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The Effect of Patient Accessible Electronic Health Records on Communication and Involvement in Care: A National Patient Survey in Sweden
Centre for empirical research on information systems, Örebro University, Sweden.
University of Skövde, School of Informatics. University of Skövde, Informatics Research Environment. (Informationssystem (IS), Information Systems)ORCID iD: 0000-0001-8957-9853
2020 (English)In: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 270, p. 1056-1060Article in journal (Refereed) Published
Abstract [en]

During recent years, patient accessible electronic health records (PAEHRs) have been implemented nationally in Sweden, as well as internationally, as a means of supporting patient engagement and shared decision making. Few studies have, however, investigated the long-term effects of PAEHRs on communicaiton with care professionals and involvement in care. The national survey study presented here, answered by 2587 patients in Sweden, focuses on these aspects specifically. The results show that the Swedish PAEHR system Journalen has had a positive impact on communication with care overall (84% agree or strongly agree with that communication with medical staff has improved), but only 31% agree or strongly agree with that the content of the PAEHR is discussed with care professionals. Journalen also seems to have a positive impact on involvement in care, but the results are mixed when it comes to effects on shared decision making.

Place, publisher, year, edition, pages
IOS Press, 2020. Vol. 270, p. 1056-1060
Keywords [en]
communication, eHealth, national survey, patient accessible electronic health records, patient involvement, adult, article, electronic health record, female, human, major clinical study, male, medical staff, patient participation, shared decision making, Sweden, Swedish citizen, telehealth
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Research subject
Information Systems
Identifiers
URN: urn:nbn:se:his:diva-18827DOI: 10.3233/SHTI200323ISI: 000625278800209PubMedID: 32570543Scopus ID: 2-s2.0-85086918416OAI: oai:DiVA.org:his-18827DiVA, id: diva2:1453556
Conference
30th Medical Informatics Europe Conference, MIE 2020, Geneva's International Conference Center, Geneva, Switzerland, 28 April 2020 through 1 May 2020, Code 161256
Note

CC BY-NC 4.0

DIGITAL PERSONALIZED HEALTH AND MEDICINE

Edited by:Pape Haugaard, LB; Lovis, C; Madsen, IC; Weber, P; Nielsen, PH; Scott, P

ISBN:978-1-64368-083-5; 978-1-64368-082-8

Available from: 2020-07-10 Created: 2020-07-10 Last updated: 2025-09-29

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Rexhepi, Hanife

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CiteExportLink to record
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Citation style
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