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Experiences of Patients With Mental Health Issues Having Web-Based Access to Their Records: National Patient Survey
Centre for Empirical Research on Information Systems, Örebro University School of Business, Örebro University, Sweden.
Department of Business Studies, Uppsala University, Sweden.
University of Skövde, School of Informatics. University of Skövde, Informatics Research Environment. (Informationssystem, Information Systems)ORCID iD: 0000-0001-8957-9853
2024 (English)In: JMIR Mental Health, E-ISSN 2368-7959, Vol. 11, no 1, article id e48008Article in journal (Refereed) Published
Abstract [en]

Background: Sharing mental health notes through patient accessible electronic health records (PAEHRs) is controversial. Many psychiatric organizations and regions in Sweden have resisted the implementation, as clinicians worry about possible harms when patients are reading their notes. Despite the documented benefits of PAEHRs, there is still a lack of knowledge regarding whether patients with mental health issues could reap similar benefits of reading their notes as other patient groups. Objective: The aim of the study is to examine the use, attitudes, and experiences of patients with mental health issues by reading their notes in the PAEHR and, moreover, whether their experiences differ from other patient groups, and if so, how. Methods: A national patient survey was conducted with answers from 2587 patients from different patient groups. In total, 504 respondents (19.5%) indicated that they experienced a mental health disease. Answers from this patient group were compared to the answers from all other respondents. Survey questions related to attitudes, information usage, and effects on contacts with care were selected for analysis. Mann-Whitney U tests were used to detect groupwise differences. Results: Patients with mental health issues use PAEHRs for checking that they have received the right care (mean_mental health 2.83, SD_mental health 1.39; mean_others 2.62, SD_others 1.37; P=.002) or suspected inaccuracies (mean_mental health 2.55, SD_mental health 1.34; mean_others 2.31, SD_others 1.30; P=.001), blocking access for professionals in other specialties (mean_mental health 3.43, SD_mental health 1.46; mean_others 3.04, SD_others 1.42; P<.001), and checking which care professionals have accessed their record (mean_mental health 4.28, SD_mental health 1.14; mean_others 4.05, SD_others 1.25; P<.001) to a significantly higher degree than other patients. On the other hand, the results show that a significantly lower proportion of patients with mental health issues (mean_mental health 3.38, SD_mental health 1.21; mean_others 3.52, SD_others 1.18; P=.02) believe that PAEHRs help them in shared decision-making compared to other patient groups. Conclusions: Patients with mental health issues who took part in the survey, as a group, express some minor differences in both the use of the PAEHR and their experiences regarding its usefulness, as compared to other patients, as a group. This patient group shows a slightly higher interest in 2 types of use: checking for accuracy of care in the record and blocking access to mental health notes for professionals from other parts of the health care system. Compared to other patient groups, these patients are less likely to experience that the PAEHR is a support in shared decision-making. The study indicates that the benefits of PAEHR on a general level are the same for this patient group as for other patients. The study does not support clinicians’ worry about possible harm to this patient group. Further research is however needed. 

Place, publisher, year, edition, pages
JMIR Publications, 2024. Vol. 11, no 1, article id e48008
Keywords [en]
digital health, digital mental health, eHealth, mental health, national survey, patient accessible electronic health record, patient experiences, patient portal, adult, article, clinician, controlled study, electronic health record, female, health care system, human, information processing, major clinical study, male, patient worry, shared decision making, Sweden, telehealth
National Category
Health Care Service and Management, Health Policy and Services and Health Economy Social and Clinical Pharmacy Medical Ethics Information Systems, Social aspects Information Systems
Research subject
Information Systems
Identifiers
URN: urn:nbn:se:his:diva-23649DOI: 10.2196/48008ISI: 001176034800001PubMedID: 38306158Scopus ID: 2-s2.0-85186107925OAI: oai:DiVA.org:his-23649DiVA, id: diva2:1843013
Note

CC BY 4.0 DEED

© Jonas Moll, Gunilla Myreteg, Hanife Rexhepi.

Correspondence Address: J. Moll; Centre for Empirical Research on Information Systems, Örebro University School of Business, Örebro University, Örebro, Nova Building, 4th floor Fakultetsgatan 1, 70182, Sweden; email: jonas.moll@oru.se

Available from: 2024-03-07 Created: 2024-03-07 Last updated: 2024-04-15Bibliographically approved

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