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  • 1.
    Goodyear, Ann-Christine
    et al.
    Arcada University of Applied Sciences, Helsinki, Finland.
    Arola, Annikki
    School of Engineering, Culture and Wellbeing, Arcada University of Applied Sciences, Helsinki, Finland.
    Rosendahl, Sirpa
    University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR).
    ‘I wish I had asked for support earlier’: Immigrant family caregivers' experiences of living with a person with dementia2023In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 37, no 3, p. 710-719Article in journal (Refereed)
    Abstract [en]

    Introduction: Immigrant family caregivers are increasing worldwide, likewise the number of older people with dementia. Caring for a person with dementia is demanding, with the carer's own life put on hold. Immigrant family caregivers have been less studied. Therefore, the aim of this study was to explore immigrant family caregivers' experiences of living with an older person with dementia.

    Method: A qualitative approach was chosen, consisting of open-ended interviews analysed using qualitative content analysis. The ethical principles of the Helsinki Declaration were applied in the study, which was duly approved by a regional ethics review board.

    Results: The content analysis resulted in three main categories: (i) the diverse roles of a family caregiver; (ii) the impact of language and culture on daily life and (iii) wish for support from society.

    Conclusions: Living with a person with dementia is demanding and burdensome and the consequences of working without any rest may increase social isolation and impair quality of life. Immigrants and country-born family caregivers living with a person with dementia seem to have similar care experiences, but immigrant family caregivers seem to receive help rather late due to a lack of information about the services available, language barriers and to financial reasons. A wish for support earlier on in the caring process was expressed, likewise for care services in the participants' native language. The various Finnish associations and peer support were important sources of information about support services. Together with culturally adjusted care services, these could contribute to better access to care, to quality and to equal care. 

  • 2.
    Mattsson, Karin
    et al.
    Mälardalen University, Sweden.
    Pietilä Rosendahl, Sirpa
    Mälardalen University, Sweden.
    Teaching gerontology - a joint mission in a globalized world2015Conference paper (Refereed)
  • 3.
    Mattsson, Karin
    et al.
    Mälardalen University, Eskilstuna.
    Pietilä Rosendahl, Sirpa
    Mälardalen University, Eskilstuna.
    Teaching gerontology in globalized academics: a qualitative study of Thai nursing students' views on ageing when studying abroad.2017In: Contemporary Nurse: health care across the lifespan, ISSN 1037-6178, E-ISSN 1839-3535, Vol. 53, no 1, p. 36-47Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Negative views towards ageing and older adults may be a reason why nurses do not choose to work in gerontological nursing. Studying in another cultural context can challenge these views. The Objective was to explore nursing students' views on ageing and older adults before and after a gerontology course held abroad.

    DESIGN AND METHOD: A qualitative approach based on content analysis of responses to open-ended questions by 30 Thai nursing students studying a gerontology course in Sweden.

    RESULTS: Three main categories: positive imprints of ageing, ageing takes its toll, and knowledge leading to action, emerged through sub-categories carrying a view of older adults as not only in need of care, but also as resourceful and competent. Professional healthcare, besides family was seen as potential caregivers in old age.

    CONCLUSIONS: Studying gerontology abroad can widen views towards ageing and older adults, inspiring nurses to work in gerontological nursing.

  • 4.
    Mattsson, Karin
    et al.
    Karolinska Institutet, Stockholm, Sweden.
    Rosendahl, Sirpa
    University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR).
    Teaching Gerontology in Transcultural Academics: A Phenomenographic Study of Thai and Swedish Nurse Educators' Conceptions of Gerontological Nursing2022In: Journal of Transcultural Nursing, ISSN 1043-6596, E-ISSN 1552-7832, Vol. 33, no 3, p. 446-455, article id 10436596211068432Article in journal (Refereed)
    Abstract [en]

    INTRODUCTION: There is an urgent need for registered nurses with gerontological competence within long-term care (LTC) of older adults. Despite increases of life expectancy, LTC for older adults is not emphasized in nursing curricula in neither Sweden nor Thailand. Thus, the aim was to explore conceptions on gerontological nursing (GN) among Swedish and Thai nurse educators.

    METHOD: A qualitative phenomenographic method, based on open-ended interviews with five Thai and nine Swedish nurse educators was conducted.

    RESULTS: The results indicate a paradox between the educators' knowledge about the implications of global aging, their hope of own aging, and LTC. The ethical responsibility of being credible and a source of inspiration in teaching about aging are focused, while GN seem to be less important.

    DISCUSSION: To increase students' interest in GN, measures need to be taken within the educational arenas, where the educators' own conceptions toward GN, cultural aspects of aging, and LTC are discussed.

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  • 5.
    Mattsson, Karin
    et al.
    Mälardalen University, Sweden.
    Yuwanich, Nuttapol
    Mälaralen University, Sweden ; Rangsit University, Bangkok, Thailand.
    Pietilä Rosendahl, Sirpa
    Mälaralen University, Sweden.
    The role of gerontology in nursing education: Cross-cultural perspectives on developing educational leadership2016Conference paper (Refereed)
  • 6.
    Pietilä Rosendahl, Sirpa
    Mälardalen University, Eskilstuna, Sweden.
    Gender Differences in Life Long Influences of Twins: How Men and Women talk about These Influences2015In: The Gerontologist, ISSN 0016-9013, E-ISSN 1758-5341, Vol. 55, no Suppl_2, p. 584-585Article in journal (Refereed)
    Abstract [en]

    The aim was to explore how male and female older twins experience their lifelong relationship with one another. Method: Qualitative data consisting of 32 life stories of Swedish older (70+) identical and fraternal twins were analyzed with narrative analysis. Results: Both male and female older twins experienced their twin relationships as the emotionally closest as related to other sibling relationships. Female twins stressed open and frequent communication as an important aspect contributing to closeness in the twin relationship, whereas the male twins related closeness to doing activities together. Dependency was stressed as emotionally draining in the female twin relationships, meaning that both of the twin sisters had not separated emotionally from one another. In contrast, the male older twins talked about competition as an aspect that was emotionally draining. Males and females define emotional closeness differently. The relationship patterns for both female/male older twins remained stable over the life course.

  • 7.
    Pietilä Rosendahl, Sirpa
    Mälardalen University, Eskilstuna, Sweden.
    Twinship from a family perspective: experiences of adults twins, their non-twin siblings and parents2017In: Innovation in Aging, E-ISSN 2399-5300, Vol. 1, no suppl_1, p. 943-Article in journal (Refereed)
    Abstract [en]

    Twins do not exist apart from a family and, for a more comprehensive understanding, twinship needs to be seen in its family context. The objective of this study was to explore twinship from the perspectives of adult twins, their non-twin siblings and parents. Methods: Qualitative methodology based on semi-structured interviews of middle-aged twins, their non-twin siblings and parents within their families. The data were analyzed using qualitative content analysis. Findings: Twinship was described by the twins as an emotionally close relationship with the co-twin but also feeling unnoticed as individuals when treated as a ‘unit’ by family members. Likewise, the older non-twin siblings could feel unnoticed, due to the parental attention given to the twins and, to compensate, take on a ‘caregiving role’ for the twins. Depending on the parents’ insights on twinship, they could facilitate or limit the development of the sibling relationships within the family.

  • 8.
    Pietilä Rosendahl, Sirpa
    Caring Sciences, Mälardalen University, Västerås, Sweden.
    Twinship from the perspective of older twins and their siblings2016In: The Gerontologist, ISSN 0016-9013, E-ISSN 1758-5341, Vol. 56, no Suppl_3, p. 494-Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to explore the experiences of twinship as described by older twins and their siblings. Method: Qualitative data based on interviews with 14 Swedish older (70+) identical and fraternal twins and with 15 siblings to twins, which were analyzed with qualitative content analysis. Results indicate that the siblings particularly in larger families substituted as parents in the raising of the twins, whereas in smaller families the role of the siblings were more unclear. In addition to bonding to one another, both twins also found comfort in having a supportive relationship of their own with yet one other sibling in the family and influential in the developing of the individual identity of the twins. For the siblings of the twins, engaging in the raising of the twins, was a way to prevent the feeling of being unnoticed. 

  • 9.
    Pietilä Rosendahl, Sirpa
    et al.
    Institute of Gerontology, School of Health Sciences, Jönköping University, Sweden / School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Bülow, Pia
    Department of Behavioural Science and Social Work, Jönköping University, Sweden.
    Björklund, Anita
    Department of Rehabilitation, School of Health Sciences, Jönköping University, Sweden.
    Images of sorrow: Experiences of losing a co-twin in old age2013In: Health, ISSN 1949-4998, E-ISSN 1949-5005, Vol. 5, no 12A, p. 64-73Article in journal (Refereed)
    Abstract [en]

    What it is like when a lifelong twin relationship ends through death in later life is the focus of this study. It draws on interview data from seven twins who are part of a longitudinal Swedish twin study (SATSA) and who lost their co-twins in old age. Data were analyzed using qualitative latent content analysis. The results showed that the experience of loss of the co-twin was pro-found, including an emotional as well as a be-havioral dimension. Loss and loneliness were expressed as the dominant feelings related to the quality of the missing relationship as well as the loss of twin identity. However, the grief ex-periences in this study were primarily related to the closeness and quality of the twin relation-ship, rather than identity. Behavioral adjust-ments included the use of outside as well as internal cognitive resources to cope with life after the loss. Despite the devastating experi-ence of losing a co-twin after a lifelong rela-tionship, the participants engaged actively in their own grief processes. It was concluded that twin loss is unique, in the sense of losing the relational twin identity, as well as it is charac-terized by similar features as the loss of a close relationship among non-twins.

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  • 10.
    Pietilä Rosendahl, Sirpa
    et al.
    Research School of Health and Welfare, School of Health Sciences, Jönköping University, Sweden / Institute of Gerontology, School of Health Sciences, Jönköping University, Sweden.
    Bülow, Pia
    Department of Behavioral Science and Social work, Jönköping University, Sweden.
    Björklund, Anita
    Department of Rehabilitation, School of Health Sciences, Jönköping University, Sweden.
    Twinship and Marriage – Experiences during the course of twin relationships2012In: Review of European Studies, ISSN 1918-7173, E-ISSN 1918-7181, Vol. 4, no 4, p. 45-53Article in journal (Refereed)
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  • 11.
    Pietilä Rosendahl, Sirpa
    et al.
    Institute of Gerontology, Jönkoping University, Sweden.
    Bülow, Pia
    Department of Behavioral Sciences and Social Work, Jönköping University, Sweden.
    Björklund, Anita
    Department of Rehabilitation, Jönköping University, Sweden.
    Twinship over the life course: Individuality and relationship in the life stories of older twins2013In: The Gerontologist, ISSN 0016-9013, E-ISSN 1758-5341, Vol. 53, no S1, p. 431-Article in journal (Refereed)
    Abstract [en]

    The aim was to explore, describe and understand experiences of twinship as told in the life stories of 35 older (70+) identical and fraternal twins, participants of the SATSA and Gender-studies in Sweden. Method: The open-ended interviews were analyzed with narrative analysis. Results: Twinship was described as relational, i.e, the relationship to the co-twin and as a negotiation between the individual and the twin identity. Three kinds of twin relationship patterns, characterized by different levels of emotional involvement were identified and labelled: nurturing, draining or superficial relationship. An attachment theoretical perspective was used in interpreting the differences in the relationship patterns. Each set of twins showed a unique balance between individualization and the twin identity which also was linked to the type of twin relationship pattern. In addition, these older twins experienced that their social environment tried to impose a twin identity upon them contradictive to their own experiences.

  • 12.
    Pietilä Rosendahl, Sirpa
    et al.
    Mälardalen University, Sweden.
    Mattsson, Karin
    Mälardalen University, Sweden.
    What has healthy aging to do with my lifestyle?: perspectives of Thai and Swedish nursing students2015Conference paper (Refereed)
  • 13.
    Pietilä Rosendahl, Sirpa
    et al.
    Mälardalen University, Eskilstuna-Västerås, Sweden.
    Rosendahl, Dan C.
    Trinity Theological Seminary, Newburg, Indiana.
    Twinship experienced by twins reared apart versus together2014In: The Gerontologist, ISSN 0016-9013, E-ISSN 1758-5341, Vol. 54, no Suppl_2, p. 111-112Article in journal (Refereed)
    Abstract [en]

    The aim was to explore and describe how older twins reared apart and reared together experience the twin relationship over a life course. Method: The life stories of 30 Swedish older (70+) identical and fraternal twins were analyzed with qualitative content analysis. Results: The relationship patterns among twins reared apart were related to the time of separation, family upbringing, time together after re-union and over the life course. Twins who spent their first years in the biological family and thereafter separated could continue their relationship over the life course, showing the same kind of relationship patterns as twins reared together. Twins who were separated during their first year after birth and reunited several years later showed a more complex relationship pattern, where some lacked an emotionally close relationship and others gradually developed such a relationship over the years. This finding challenges popular views on twins reared apart being emotionally close.

  • 14.
    Pietilä Rosendahl, Sirpa
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Division of Caring Sciences, Eskilstuna, Sweden.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Division of Caring Sciences, Eskilstuna, Sweden.
    Mazaheri, Monir
    Mälardalen University, School of Health, Care and Social Welfare, Division of Caring Sciences, Eskilstuna, Sweden / Faculty of Nursing and Midwifery, Tehran University of Medical Sciences, Iran.
    Immigrants with dementia in Swedish residential care: An exploratory study of the experiences of their family members and nursing staff2016In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 16, no 18, p. 1-12, article id 200Article in journal (Refereed)
    Abstract [en]

    Background

    Worldwide, there is a growing population of older people who develop dementia in a country other than that of their origin. When their dementia has reached an advanced stage, residential care is most often needed. People with dementia in Sweden are often cared for in group homes. For immigrants, this may mean a linguistically challenging care environment for both healthcare staff and the patients’ family members.

    The aim of this study was to explore and describe the experiences of family members and professional caregivers regarding the care provided to immigrants with dementia in group homes in Sweden.

    Methods

    An exploratory, descriptive study with a qualitative approach was chosen. In-depth semi-structured interviews were conducted with nine professional caregivers and five family members of people with dementia with Finnish, Estonian, Hungarian and Ingrian backgrounds; all were chosen purposefully. All people with dementia had lost their Swedish language skills as their second language. The data was analysed using qualitative content analysis.

    Results

    Three main categories and seven subcategories were identified. The first main category: A new living situation comprised the subcategories: adjusting to new living arrangements and expectations regarding activities and traditional food at the group home, the second main category: Challenges in communication with the subcategories: limited communication between the immigrant with dementia and the Swedish-speaking nursing staff and the consequences of linguistic misunderstandings and nuanced communication in a common language and the third main category: The role of the family member at the group home with the subcategories: a link to the healthy life story of the family member with dementia andan expert and interpreter for the nursing staff.

    Conclusions

    The family member played a crucial role in the lives of immigrants with dementia living in a group home by facilitating communication between the nursing staff and the PWD and also by making it possible for PWD to access the cultural activities they wanted and which professional caregivers were either not able to recognise as needed or could not deliver.

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  • 15.
    Pietilä, Sirpa
    Högskolan i Jönköping, HHJ, Institutet för gerontologi.
    Tvillingskap genom livet: individualitet och relation i äldre tvillingars livsberättelser2012Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The overall aim of this thesis was to explore, describe and understand experiences of twinship as told in the life stories of older twins. The 35 older twins who participated in this thesis were part of two longitudinal studies of older twins, SATSA (the Swedish Adoption Twin Study of Aging) and the Gender study. The study design is qualitative and the 35 interviews were collected using a narrative method. The life stories were analysed with narrative analysis (studies I and II) and qualitative, latent content analysis (studies III and IV).

    According to the twins in this thesis, twinship, was described from the relationship with the co-twin(I, III, IV) and from an identity perspective (II). Twin relationships are unique and different in their own way. Three relationship patterns were identified and labelled as: nurturing, draining or superficial based on qualitative aspects (I). The differences in the three relationship patterns became even more evident during critical stages in life, for example, when getting married (III) or losing the co-twin through death (IV). These events became turning points which meant that the twins needed to adjust to a more individualized life. Twins in nurturing or superficial relationship patterns did not experience these transitions as particularly dramatic, while for twins in draining relationships these life transitions were more dramatic. From an attachment theory point of view, the older twins remained attachment figures with an unaltered attachment pattern throughout life(I). Bound together with the close twin relationship is how twins define themselves, since the twinship means handling both your individual identity and the twin identity. The self-descriptions, with emphasis on differences, are viewed against the background of how the twins experienced the environment perceiving them as a social unity and were interpreted as a desire to emphasize ones individuality as related to the twin partner and as a message to the environment of desiring to be viewed as a unique individual (II).

    In summary twinship was described by most as a close, enriching relationship throughout life and for some, less enriching depending on what kind of relationship they had with their twin partner. An identity work was at the same time taking place, trying to establish a position as an individual in the twin relationship and to assert ones individuality to the rest of the environment in the message:“We are not as alike as you think!”

  • 16.
    Pietilä, Sirpa
    et al.
    Research School of Health and Welfare, School of Health Sciences, Jönköping University, Sweden / Institute of Gerontology, School of Health Sciences, Jönköping University, Sweden.
    Björklund, Anita
    Department of Rehabilitation, School of Health Sciences, Jönköping University, Sweden.
    Bülow, Pia
    Department of Behavioral Science and Social Work, Jönköping University, Sweden.
    Older twins' experiences of the relationship with their co-twin over the life course2012In: Journal of Aging Studies, ISSN 0890-4065, E-ISSN 1879-193X, Vol. 26, no 2, p. 119-128Article in journal (Refereed)
    Abstract [en]

    Based on 35 life stories of aging twins, this study focuses on personal experiences and recollections of their relationships with the co-twin over the life course. The participants are part of two longitudinal Swedish twin studies on aging, SATSA and Gender. In the narrative analysis, three relationship patterns, labeled ‘nurturing’, ‘draining’, and ‘superficial’, emerged, pointing to qualitative aspects in the co-twin relationship. The dominating aspect was emotional closeness, which differed in the three relationship patterns. In the nurturing twin relationship pattern, emotional closeness was experienced as intimacy and yet independence, while in the draining relationship pattern it was experienced as dependence. The superficial twin relationship was experienced as distant and lacking in emotional involvement. Most of the relationship patterns seemed to remain the same throughout life. However, seen from a life course perspective, this study pointed to complexity and diversity in lifelong twin relationships.

  • 17.
    Pietilä, Sirpa
    et al.
    Jönköping University.
    Bülow, Pia
    Jönköping University.
    Jag och min tvilling - min livsberättelse: Människorna bakom tvillingforskningen sett ur ett narrativt perspektiv2007Conference paper (Refereed)
  • 18.
    Pietilä, Sirpa
    et al.
    Jönköping University.
    Bülow, Pia
    Jönköping University.
    Björklund, Anita
    Jönköping University.
    Bilder av sorg: upplevelser av att förlora tvillingpartner i hög ålder2012Conference paper (Refereed)
  • 19.
    Pietilä, Sirpa
    et al.
    Research School of Health and Welfare, Jönköping University, Sweden ; Institute of Gerontology, Jönköping University, Sweden.
    Bülow, Pia
    Department of Behavioral and Social Sciences, Jönköping University, Sweden.
    Björklund, Anita
    Department of Rehabilitation, Jönköping University, Sweden.
    Twinship and marriage: A challenge to the close twin relationship?2012In: Twin Research and Human Genetics, ISSN 1832-4274, E-ISSN 1839-2628, Vol. 15, no 2, p. 229-Article in journal (Refereed)
    Abstract [en]

    Twins have a constant companion from the very beginning and if the relationship with the co-twin has been aclose one, there might be difficulties in finding a marriage partner. Based on 35 life stories of older twins, this study focuses on personal experiences of establishing the marital relationship in relation to the co-twin relationship. The participants are a subsample of two Swedish longitudinal twin studies, SATSA and the Gender study and they were MZ/DZ, female/male twins aged 70-91 years. All except one was or had been married. The life stories were analyzed with content analysis. The results showed that (n =16) of the participants experienced that their marriages were negatively affected by the twin relationship and (n =19) did not experience any negative influence at all. The most common reasons for the negative influence on marriages was that the spouses of the twins did not get along with one another or the co-twin and the second common reason was that the spouse felt threatened by the close twin relationship. The consequences of the negative influences were that the twins in a pair distanced themselves from one another. Spouses of the twins who described no influence on their marriage were accepting of the twin relationship and got along well with one another and the co-twin. Those twins who were married to two siblings or friends had the most regular contact frequency. The study showed that when twins get married, it involves not only the two individuals marrying each other, but also the relationship with the co-twin as well as the spouse of the co-twin.

  • 20.
    Rosendahl, Dan
    et al.
    Trinity College of the Bible and Trinity Theological Seminary, Evansville, USA.
    Rosendahl, Sirpa
    University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR).
    Role stress: Experiences of Swedish Non-Lutheran Clergy2019In: Proceedings Book: ICSS XX, 20th International Conference on Social Sciences, 6-7 September 2019, Zurich, EUSER - European Center for Science Education and Research , 2019, p. 218-218Conference paper (Refereed)
  • 21.
    Rosendahl, Dan
    et al.
    Trinity Bible College and Trinity Theological Seminary, Evansville, IN, USA.
    Rosendahl, Sirpa
    University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR).
    Role-stress: Experiences of Non-Lutheran Clergy2020In: European Journal of Social Sciences, ISSN 2601-8632, Vol. 3, no 1, p. 108-118Article in journal (Refereed)
    Abstract [en]

    Background: About fifty percent of Swedish Non-Lutheran Clergy leave the vocation before retirement resulting in huge personal, financial, psychological, emotional, spiritual and social costs. The factors behind this substantial flood out has scarcely been researched. From the multifaceted problematic aspects of pastoral work, the aim of this study was to explore the clergy’s experiences of work stressors with the focus on Role-stress. Method: A qualitative approach with 19 open ended interviews was used and the interview material underwent qualitative content analysis. Results: Multiple external role-senders together with the individual pastor’s experienced, internal expectations and demands, generated different types of Clergy role-categories that surfaced during the analysis. These roles were accompanied by several role-stressors as apparent with the roles Servants of men and Servants of God and the presence of Vision Conflict. Further the pastor as the Church’s ultimately responsible person is plagued by Role-ambiguity and Role-confusion, and as the Proven trustworthy administrator struggling with Role-conflict. Family-work and Work-family conflicts, especially for female pastors, contributed to Work overload, this consequence also effecting the male colleagues during the generic attempts to meet as many of the Church members’ expectations as possible. The accumulated Work overload, together with a lowered level of Work Satisfaction, boosted the Turnover intentions. Conclusions: Mutual succinct information between employer and employee, active continuous communication and refined and updated organizational structure need to be coordinated in order to lower the level of experienced role stress and thus reduce the present substantial number of Clergy leaving the vocation prematurely.

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  • 22.
    Rosendahl, Sirpa
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Traditional Meals and Sense of At-Homeness -: Finnish Immigrants with Dementia in Bilingual Residential Care in Sweden2019In: ICSS XIX, 12-13 July 2019: 19th International Conference on Social Sciences / [ed] Ahmet Ecirli, European Center for Science, Education and Research , 2019, p. 33-Conference paper (Refereed)
  • 23.
    Rosendahl, Sirpa
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Traditional Meals and Sense of At-Homeness: Finnish Immigrants with Dementia in Bilingual Residential Care in Sweden2019In: European Journal of Social Sciences, ISSN 2601-8632, Vol. 2, no 3, p. 42-50Article in journal (Refereed)
  • 24.
    Rosendahl, Sirpa
    et al.
    Institute of Gerontology, School of Health Sciences, Jönköping University, Sweden.
    Björklund, Anita
    Department of Rehabilitation, School of Health sciences, Jönköping University, Sweden.
    Bülow, Pia
    Department of Behavioral Science and Social work, Jönköping University, Sweden.
    'We are not as alike, as you think' sense of individuality within the co-twin relationship along the life course2013In: Journal of Aging Studies, ISSN 0890-4065, E-ISSN 1879-193X, Vol. 27, no 4, p. 339-346Article in journal (Refereed)
    Abstract [en]

    We have explored how older twins experience and describe themselves in relation to their co-twin. The life stories of 20 older twins were analyzed with narrative analysis.

    Results showed that the twins described themselves from the point of differences in relation to the co-twin. This was based on experiences of how other people viewed them as alike, as well as on life events along the life course, which contributed to the perception of oneself as an individual in relation to the co-twin. The emphasis on unlikeness was therefore interpreted as a way of trying to establish a position as an individual within the co-twin relationship and to assert ones individuality to the rest of the social environment. To claim oneself as an individual was an ongoing identity work along the life course.

  • 25.
    Rosendahl, Sirpa
    et al.
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Mattsson, Karin
    Department of Health Care Sciences, Ersta Sköndal Community College, Stockholm, Sweden / Department of Neurobiology, Care Sciences and Society (NVS) H1, Karolinska Institutet, Huddinge, Sweden.
    Yuwanich, Nuttapol
    School of Nursing Science, Rangsit University, Ptumthani, Thailand.
    Cross-cultural perspectives on gerontology in nursing education: a qualitative study of nurse educators’ experiences2019In: Gerontology & Geriatrics Education, ISSN 0270-1960, E-ISSN 1545-3847, Vol. 41, no 1, p. 109-120Article in journal (Refereed)
  • 26.
    Söderman, Mirkka
    et al.
    School of Health, Care and Social Welfare, Division of Caring Sciences and Health Care Education, Mälardalen University, Eskilstuna-Västerås, Sweden.
    Pietilä Rosendahl, Sirpa
    School of Health, Care and Social Welfare, Division of Caring Sciences and Health Care Education, Mälardalen University, Eskilstuna-Västerås, Sweden.
    Caring for Ethnic Older People Living with Dementia – Experiences of Nursing Staff2016In: Journal of Cross-Cultural Gerontology, ISSN 0169-3816, E-ISSN 1573-0719, Vol. 31, no 3, p. 311-326Article in journal (Refereed)
    Abstract [en]

    The total number of persons living with dementia is estimated to double every 20 years and ageing migrant populations are growing in several countries. There are gaps in the health and social care of people from other countries, regardless of the efforts made when someone has a dementia diagnosis; similarly, receiving care in sheltered accommodation is less common. The aim of this study was to explore and describe the nursing staff's experiences of caring for non-Swedish speaking persons living with dementia in a Finnish speaking group home in relation to a Swedish speaking group home in Sweden. 27 qualitative semi-structured interviews were analysed using qualitative content analyses. The first main category, "communication", concentrated on language abilities and deficiencies, non-verbal language, highlighting the consequences of not understanding and the benefits of a common language. The second main category, "culturally oriented activities", focused on being served traditional food, celebrating holidays at the group home, the importance of traditions and the importance of familiar music as cultural elements. The Swedish speaking nursing staff could provide qualitative and equitable care, but the challenge was greater for them than for the bilingual nursing staff who spoke the same language as the residents.

  • 27.
    Söderman, Mirkka
    et al.
    School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna-Västerås, Sweden.
    Pietilä Rosendahl, Sirpa
    School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna-Västerås, Sweden.
    Caring for the ethnic elders suffering from dementia – experiences of nursing staff2014Conference paper (Refereed)
    Abstract [en]

    Aim: The aim of this study was to describe and compare the experiences of nursing staff caring for ethnic elderly persons suffering from dementia in an ethnic care setting and a Swedish-speaking care setting. 

    Background: The numbers of ethnic elderly persons who speaks only their native language and are suffering from dementia are growing. As the dementia progresses into its ́ advanced stage the person suffering from dementia first loses the second language and later the native language and needs to be admitted to institutional care. In some municipalities in Sweden ethnic elders suffering from dementia receives care in an ethnic care setting where the persons` native language is spoken, but most ethnic elders suffering from dementia receives care in Swedish-speaking institutions. In terms of communication this may be a challenge for the nursing staff. 

    Methods: The study has a qualitative approach with 27 semi-structured interviews. Data consist of 12 interviews with Finnish-speaking nursing staff working in a Finnish-speaking group home for persons suffering from dementia in Sweden and of 15 interviews with nursing staff working in Swedish-speaking group homes caring for non-Swedish older persons with dementia. The material is analysed with qualitative analysis. 

    Findings: The experiences of the nursing staff showed that caring for the patients in a Finnish-speaking environment meant that they could communicate with the patients in their native language, which in turn stimulated the cognitive, physiological and social abilities of the person with dementia. Besides the language, the Finnish-speaking nursing staff also included cultural aspects such as Finnish music, food and media into the daily life in the care. The nursing staff in the Swedish-speaking group homes, perceived that all patients received equal basic care, but as they did not speak the patients` language communication was limited The language barrier resulted in behavioural disturbances at times in the non-Swedish patients with dementia. 

    Implications: The two types of care settings were compared and besides a mutual language, the bilingual staff in the Finnish-speaking group home were able to include more of the cultural aspects which all together contributed to a sense of homeness for the Finnish elders with dementia. The care in the Swedish-speaking group homes was considered good and equal, but was also experienced as limited and frustrating by the Swedish-speaking nursing staff. Other strategies to communicate with the patients had were used and which will be further discussed.

  • 28.
    Söderman, Mirkka
    et al.
    School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden / Division of Insurance Medicine, Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden.
    Rosendahl, Sirpa
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Sällström, Christina
    Faculty of Health, Science and Technology, Department of Health Sciences, Karlstad University, Karlstad, Sweden.
    Caring and Uncaring Encounters between Assistant Nurses and Immigrants with Dementia Symptoms in Two Group Homes in Sweden: an Observational Study2018In: Journal of Cross-Cultural Gerontology, ISSN 0169-3816, E-ISSN 1573-0719, Vol. 33, no 3, p. 299-317Article in journal (Refereed)
    Abstract [en]

    Background: The total number of people with dementia symptoms is expected to double every 20years and there will also be an increase in the number of older immigrants in several countries. There are considerable deficiencies in the present knowledge of how to conduct well-functioning health care for immigrants with dementia symptoms. The aim of this study was to explore caring and uncaring encounters between assistant nurses and immigrants in two group homes for persons with dementia symptoms in Sweden: a Finnish-speaking as well as a Swedish-speaking context. In addition, this study aims to describe how caring and uncaring encounters are manifested in these two contexts according to Halldorsdottir's theory of Caring and Uncaring encounters. Method: Descriptive field notes from 30 separate observations were analyzed using qualitative deductive content analysis. Results: The main category caring encounters focused on reaching out to initiate connection through communication, removing masks of anonymity by acknowledging the unique person, acknowledgment of connection by being personal. Reaching a level of truthfulness by being present and showing respect, raising the level of solidarity by equality and true negotiation of care, based on the residents' needs. The main category, uncaring encounters, focused on disinterest in and insensitivity towards the other, coldness in the connection and lack of humanity in care situations. The observations showed that caring encounters occurred more in the Finnish-speaking context and uncaring encounters more often in the Swedish context. Conclusion: Encounters could be caring, uncaring, and carried out using a person-centered approach. Communication and relationships could be facilitated using the same language but also through learning to interpret residents' needs and desires.

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  • 29.
    Wongsala, Manothai
    et al.
    School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden ; Boromarajonani College of Nursing Nakhonratchasima, Faculty of Nursing, Praboromarajchanok Institute, Nakhonratchasima, Thailand.
    Anbäcken, Els-Marie
    Social Work with Focus on Older Adults, Linköping University, Sweden ; School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Manasatchakun, Pornpun
    Boromarajonani College of Nursing Chiang Mai, Faculty of Nursing, Praboromarajchanok Institute, Chiang Mai, Thailand.
    Rungkawatt, Viliporn
    Boromarajonani College of Nursing Nakhonratchasima, Faculty of Nursing, Praboromarajchanok Institute, Nakhonratchasima, Thailand.
    Rosendahl, Sirpa
    University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR).
    Lifestyle Changes Using the Plan-Do-Study-Act Cycle among Older Thai Adults – A Focus Group Study2023In: Activities, Adaptation & Aging, ISSN 0192-4788, E-ISSN 1544-4368, Vol. 47, no 4, p. 566-587Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to explore experiences of applying the Plan-Do-Study-Act (PDSA) cycle among older Thai adults. A qualitative research approach was used based on focus group interviews with eight male and five female participants aged 62–78 years old. Data was analyzed using qualitative thematic analysis. The findings presented how older adults set, carried out, and adjusted their own lifestyle change plans to enhance active aging. Although participants experienced difficulties at first, learning during the group process following the PDSA steps became easier. Support from the moderator during meetings, as well as family during the execution of their plans at home ensured successful application of the PDSA cycle. The PDSA cycle encouraged participants to be concerned about their health, something they themselves found beneficial. This tool will be useful to apply in health practice and policy when performing group activities to enhance active aging.

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  • 30.
    Wongsala, Manothai
    et al.
    School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Anbäcken, Els-Marie
    Gerontological Social Work, Linköping University, Sweden / School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Rosendahl, Sirpa
    University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR).
    Active ageing – perspectives on health, participation, and security among older adults in northeastern Thailand: A qualitative study2021In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 21, no 1, article id 41Article in journal (Refereed)
    Abstract [en]

    Background: Health, participation, and security are the basic pillars of active ageing suggested by the WHO. The concept is used by professionals but requires exploration from the perspectives of older people themselves. This study aims to explore how older adults experience and describe health, participation, and security. Methods: A qualitative research approach was used based on open-ended interviews with 20 older Thai adults aged 60–92 years. The interviews were analysed using qualitative content analysis. Results: The results showed perspectives related to experiences of daily life and local culture. Health while ageing, was described as the absence of barriers to continued daily living, combined with a peaceful and adaptive mindset. Participation was described as maintaining social networks and being a formal volunteer, with an emphasis on the “making of merits”, of meaningful activities and being respected. Security was described as manageable living conditions and managing to finalize life well by balancing dependency and independency in relation to children to sustain the traditional value of gratitude between generations. Conclusions: These understandings will support healthy policy planning by providing resources and activities that relate to older Thai adults’ perspectives of health, participation and security and ultimately contribute to a better quality of life. 

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  • 31.
    Wongsala, Manothai
    et al.
    Mälardalen University, Sweden.
    Anbäcken, Els-Marie
    Mälardalen University, Sweden.
    Rosendahl, Sirpa
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Lomwong Saansook: Improving Health, Participation and Security among Thai Older Adults Using PDSA Wheel2019Conference paper (Refereed)
  • 32.
    Wongsala, Manothai
    et al.
    Mälardalen University, Sweden.
    Anbäcken, Els-Marie
    Mälardalen University, Sweden.
    Rosendahl, Sirpa
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Perspectives of Health, Participation and Security among Older Adults in Northeastern Thailand2018Conference paper (Other academic)
  • 33.
    Wongsala, Manothai
    et al.
    Mälardalen University, Sweden.
    Anbäcken, Els-Marie
    Mälardalen University, Sweden.
    Rosendahl, Sirpa
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Manasatchakun, Pornpun
    Boromarajonani College of Nursing Chaing Mai, Thailand.
    Rungkawatt, Vilaiporn
    Boromarajonani College of Nursing Nakhonratchasima, Thailand.
    "Lomwong Saansook": A Group Meeting Using PDSA Wheel to Improve Health, Participation and Security among Thai Older Adults2019In: iHSEP2019 Conference Abstract Book: International Conference on Advancement in Health Sciences Education and Professions (iHSEP2019): Synergy and Reform for Better Health, Ministry of Public Health, Thailand , 2019Conference paper (Refereed)
    Abstract [en]

    Background In general, activities to promote well being among the elderly in Thailand are not selfinitiated Therefore, older people need to be encouraged to find out how to manage their daily life and activities This study applied the concept of the PDSA wheel Plan Do Study Act in order to enhance their wellbeingThe activity called Lomwong SaansookThai wordsLSmeetings implemented among older adults aged 60 and above The PDSA concepts are used to encourage participants to plan a goal, do it by themselves, and use the group dynamic with other participants in studying evaluating to improve the activities Topics of meetings included health issues, participation, and security related to the active aging concepts Objective To describe older adults¶ perceptions of changes and improvement in their daily lives after participating in LSmeetings Methodology This qualitative study employed the phenomenography method using focus group interviews which were conducted two weeks after four LSmeetings with 15 participants They were divided into two focus groups contained seven and eight participants including males and females Data were collected by field notetaking and video recordingData were analyzed by the multistage coding process to identify themes of description Results The participants described their perceptions of changes and improvements by five themes, including not familiar but possible with supporting, behaviors improving, meaningful knowledge needs, learn with each other, and success factors DiscussionConclusion Thai older people in this area had difficulties to make goals of lifestyle changes by themselves, but it was possible with the support of the moderator As a result, their healthrelated behaviors had improved The examples of a lifestyle change were improvements in fooddrink intake, exercise, and saving money; however, the causes of changing behaviors were not confirmed clearly The important factors of changing behaviors were meaningful new knowledge, group process, support from the moderator, and good relationships with health personnelAccording to the results of this study, it can be concluded that the meeting using the PDSA wheel may be able to use as a guideline providing sustainable activities for Thai older people to encourage improving individual implementation of lifestyle changes, in order to enhance their wellbeing.

  • 34.
    Wongsala, Manothai
    et al.
    School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Rosendahl, Sirpa
    University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR).
    Manasatchakun, Pornpun
    Boromara‑jonani College of Nursing Chiang Mai, Thailand.
    Anbäcken, Els-Marie
    School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Applying the PDSA cycle to a group activity promoting lifestyle change for the active ageing of older Thai adults – a focused ethnography2022In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 22, p. 1-10, article id 117Article in journal (Refereed)
    Abstract [en]

    Background

    The proportion of the older Thai population is increasing rapidly. Lifestyle may impact active ageing in later life. Interventions that empower older Thai adults to initiate and carry out lifestyle changes are needed. This study applied the Plan-Do-Study-Act (PDSA) cycle, a tool for improving lifestyle changes, with the aim of exploring interactions among older Thai adults when participating in group activities.

    Method

    Focused ethnography was used based on participant observations, field notes and video recordings of 15 older Thai adults aged 62–78 years.

    Results

    Older Thai adults faced difficulties at the beginning since they were unfamiliar with initiating and carrying out lifestyle changes according to the PDSA concept. This provided a learning opportunity enabling older Thai adults to reach their individual goals of lifestyle change.

    Conclusions

    The PDSA cycle has the potential to empower older adults in group contexts to promote lifestyle changes related to active ageing.

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  • 35.
    Yuwanich, Nuttapol
    et al.
    Mälardalen University, Sweden ; Rangsit University, Bangkok, Thailand.
    Mattsson, Karin
    Mälardalen University, Sweden.
    Pietilä Rosendahl, Sirpa
    Mälardalen University, Sweden.
    Thai nurses' experiences of utilizing (gerontological) knowledge within nursing care: A qualitative study2016Conference paper (Refereed)
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