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  • 1.
    Hellström Muhli, Ulla
    et al.
    University of Skövde, School of Life Sciences.
    Karlsson, Christina
    University of Skövde, School of Life Sciences.
    Registered nurses' shared knowledge construction of dementia careManuscript (preprint) (Other academic)
  • 2.
    Karlsson, Christina
    University of Skövde, School of Health and Education. University of Skövde, Health and Education. Högskolan i Jönköping, Hälsohögskolan.
    Detection and assessment of pain in dementia care practice: Registered nurses’ and certified nursing assistants’ experiences2015Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Aim: The overall aim of the thesis was to explore and describe registered nurses’ (RNs) and certified nursing assistants’ (CNAs) experiences of detection and assessment of pain in older people with cognitive impairment and dementia. A further aim was to evaluate the Abbey Pain Scale-SWE (APS-SWE) in dementia care practice.

    Methods: An exploratory and descriptive design was used in Study I. An exploratory and interpreting design was used in Study II and Study III. A prospective, descriptive, observational and instrumental design was used in Study IV. Focus group interviews (I) and individual interviews (II, III) were applied to explore and describe RNs’ and CNAs’ experiences of pain assessment in people living with dementia. Qualitative content analysis (I) and philosophical hermeneutics (II) were used to analyse qualitative data. Observation, instrument, and questionnaire were applied to evaluate reliability and face validity of the APS-SWE for pain assessment. Descriptive statistics and reliability analyses were used to analyse quantitative data (IV).

    Results: RNs in special housing accommodation settings experiences that pain assessment in people with dementia is challenging primarily due to their changed RN consultant role, which to a great extent is directed into administrative and consultative tasks rather than bedside care. This has led to decreased time in daily nursing care, preventing recognising symptoms of pain. This have also led to that RNs are dependent on information from CNAs who are the front-line staff providing daily care (I). CNAs’ perception of signs of pain in people with dementia emerges from being present in the care situation and alertness on physical and behavioural changes that could be due to pain, and from providing the care in a preventive, protective and supportive way to prevent painful situations occurring (II). RNs and CNAs working in home healthcare team use a variety of strategies to detect and assess pain. A trustful work relationship based on staff continuity and a good relation to the person in need of care facilitates pain assessment situations (III). Systematic observation of older people living in special housing accommodation during rest and mobility using the APS-SWE demonstrates that the scale has adequate internal consistency, reliability, and face validity for pain assessment (IV).

    Conclusions: This thesis found that the RNs’ and CNAs’ detections and assessments of pain rely on solid cooperation, staff continuity, and good knowledge of the person cared for. It was also revealed that there is a lack of using appropriate and assisting pain tools. The APS-SWE show adequate reliability and face validity and can serve as a useful pain tool to assist in detection and assessment of pain in older people who are limited in verbalising pain recognisable. Further evaluation of how the person-centred perspective is applied in pain assessment situations is needed in order to evaluate positive outcomes in people with dementia. Further psychometric evaluation of the APS-SWE in clinical dementia care practice is needed to strengthen validity and reliability.

  • 3.
    Karlsson, Christina
    University of Skövde, School of Life Sciences.
    Undersköterskans tolkningar av tecken på smärta hos personer med demens2013In: BestPractice, ISSN 1177-5645, Vol. 2, no 6, p. 14-16Article in journal (Refereed)
  • 4.
    Karlsson, Christina Elisabeth
    et al.
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Ernsth Bravell, Marie
    Institute of Gerontology, University of Jönköping, Jönköping, Sweden.
    Ek, Kristina
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Bergh, Ingrid
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Home healthcare teams' assessments of pain in care recipients living with dementia: a Swedish exploratory study2015In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 10, no 3, p. 190-200Article in journal (Refereed)
  • 5.
    Karlsson, Christina
    et al.
    Department of Nursing, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Sidenvall, Birgitta
    Department of Nursing, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Bergh, Ingrid
    University of Skövde, School of Life Sciences.
    Ernsth-Bravell, Marie
    School of Health Sciences, Institute of Gerontology, Jönköping University, Jönköping, Sweden.
    Certified nursing assistants' perception of pain in people with dementia: a hermeneutic enquiry in dementia care practice2013In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 22, no 13-14, p. 1880-1889Article in journal (Refereed)
    Abstract [en]

    Aims and objectives To interpret certified nursing assistants' perception of pain in people with dementia in nursing care practice. Background Detection and understanding of pain in people with dementia remains a challenge due to their difficulty in verbalising their pain. Nursing assistants provide daily nursing care and therefore play a vital role in pain detection. Nevertheless, pain research from the nursing assistants' perspective is sparse. Design A qualitative approach within the interpretive tradition was adopted. Methods Individual interviews with twelve certified nursing assistants, all working in dementia care, were conducted and interpreted using philosophical hermeneutics. Results Nursing assistants' perception of pain is on three levels. Each level consists of a theme. The first theme Being in the facing phase' refers to the initial perception of the person's expressions. The second theme Being in the reflecting phase' means ability to reflect more deeply on one's perception, together with other colleagues and next of kins. The third theme Being in the acting phase' means perception arising from preventive and protective care focusing on contributing to well-being. The themes served as a basis for comprehensive understanding, where perception of pain arises from closeness, compassion and dialogue based on personhood, accompanied by professional knowledge of pain and dementia. Conclusion Nursing assistants' perception of pain is based on ethical concerns and on their own subjective pain experiences rather than on medical skills. Their perception derives from fundamental values that are important aspects of nursing care. Interdisciplinary solidarity may strengthen cooperation amongst CNAs and RNs to achieve best pain management practice. Relevance to clinical practice Attention to nursing assistants' perception of pain needs to be highlighted when they are front-line staff and have developed important pain detection skills. Their skills are essential complements and must be used in the development of pain management in dementia care practice.

  • 6.
    Karlsson, Christina
    et al.
    University of Skövde, School of Life Sciences. Department of Nursing Science, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Sidenvall, Birgitta
    Department of Nursing Science, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Bergh, Ingrid
    University of Skövde, School of Life Sciences.
    Ernsth-Bravell, Marie
    Institute of Gerontology, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Registered Nurses' View of Performing Pain Assessment among Persons with Dementia as Consultant Advisors2012In: Open Nursing Journal, ISSN 1874-4346, E-ISSN 1874-4346, Vol. 6, no 1, p. 62-70Article in journal (Refereed)
    Abstract [en]

    Background: Pain assessment in persons with dementia is well known as a challenging issue to professional caregivers, because of these patients´ difficulties in verbalising pain problems. Within municipal dementia care in Sweden, pain assessment has become problematic for registered nurses, as they have entered a new role in their nursing profession, from being clinical practitioners to becoming consultant advisers to other health care staff.

    Aim: To present municipal registered nurses´ view of pain assessment in persons with dementia in relation to their nursing profession as consultant advisers.

    Methods: Purposive sampling was undertaken with 11 nurses invited to participate. Data were collected by focus groups. Qualitative content analysis was used to analyse the data.

    Findings: Four categories were identified to describe registered nurses´ view of pain assessment: estrangement from practical nursing care, time consuming and unsafe pain documentation, unfulfilled needs of reflection possibilities, and collaboration and coordination.

    Conclusions: The performance of pain assessment through a consultant advising function is experienced as frustrating and as an uncomfortable nursing situation. The nurses feel resistance to providing nursing in this way. They view nursing as a clinical task demanding daily presence among patients to enable them to make accurate and safe assessments. However, due to the consultative model, setting aside enough time for the presence seems difficult to accomplish. It is necessary to promote the quality of systematic routines in pain assessment and reflection, as well as developing professional knowledge of how pain can be expressed by dementia patients, especially those with communication difficulties.

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