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  • 1.
    Bergh, Ingrid
    et al.
    University of Skövde, School of Life Sciences.
    Björk, Maria
    University of Skövde, School of Life Sciences.
    Sense of coherence over time for parents with a child diagnosed with cancer2012In: BMC Pediatrics, ISSN 1471-2431, E-ISSN 1471-2431, Vol. 12, p. Article number 79-Article in journal (Refereed)
    Abstract [en]

    Background: When a child is diagnosed with childhood cancer this creates severe stress in the parents. The aim of the study was to describe the sense of coherence and its change over time in a sample of parents of children diagnosed with cancer.

    Methods: The Swedish version of SOC (29 items) was used to measure the parents’ (n = 29) sense of coherence. Data were collected at four time-points: Time-point 1 at the time of diagnosis; time-point 2 during the treatment; time-point 3 after the child had completed their treatment and time-point 4 when the child had been off treatment for some years or had died.

    Results: The results showed that SOC in the investigated population is not stable over time. The parents decreased in total SOC between time-points 1, 2 and 3. Mothers had significantlyweaker total SOC score including the components Manageability and Meaningfulness at time-points 1 as well time-point 2 compared to the fathers. However, for the component Comprehensibility no significant differences were shown between mothers and fathers. This study indicates that mothers’ and fathers’ SOC scores change over time during the child’s cancer trajectory. However, the pattern in these changes varies between mothers and fathers.

    Conclusions: This study indicates that mothers and fathers may have different support needs during their child’s cancer trajectory.

  • 2.
    Björk, Maria
    University of Skövde, School of Life Sciences.
    Barn med tumörsjukdom2009In: Pediatrisk omvårdnad / [ed] Inger Hallström & Tor Lindberg, Stockholm: Liber, 2009, 1, p. 233-238Chapter in book (Other academic)
  • 3.
    Björk, Maria
    et al.
    University of Skövde, School of Life Sciences.
    Jenholt Nolbris, Margaretha
    Institutionen för vårdvetenskap och hälsa, Sahlgrenska akademin, Göteborgs universitet / Centrum för barns rätt till hälsa, Drottning Silvias barn- och ungdomssjukhus, Göteborg.
    Hedman Ahlström, Britt
    Institutionen för omvårdnad, hälsa och kultur, Högskolan Väst, Trollhättan.
    Att vara barn och möta sjukdom2012In: Att möta familjer inom vård och omsorg / [ed] Benzein Eva, Hagberg Margaretha, Saveman, Britt-Inger, Lund: Studentlitteratur, 2012, 1, p. 191-206Chapter in book (Other (popular science, discussion, etc.))
  • 4.
    Björk, Maria
    et al.
    University of Skövde, School of Life Sciences.
    Johansson Sundler, Annelie
    University of Skövde, School of Life Sciences.
    Hammarlund, Kina
    University of Skövde, School of Life Sciences.
    Hallström, Inger
    Lund University, Department of Health Sciences, Lund, Sweden.
    Living an everyday life shaded with traces from the cancer trajectory – families' lived experiences in a six year follow up2012In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 59, no 6, p. 1130-1130Article in journal (Refereed)
  • 5.
    Björk, Maria
    et al.
    University of Skövde, School of Life Sciences.
    Nordström, B.
    Division of Nursing, Department of Health Sciences, Lund University, Lund.
    Wiebe, T.
    Department of Pediatrics, Lund University Hospital, Lund, S-22185 Lund, Sweden.
    Hallström, I.
    Division of Nursing, Department of Health Sciences/The Vårdal Institute, Lund University, Lund, Sweden.
    Returning to a changed ordinary life - families' lived experience after completing a child's cancer treatment2011In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 20, no 2, p. 163-169Article in journal (Refereed)
    Abstract [en]

    The aim of the study was to illuminate the families' lived experience after completing a child's cancer treatment. The study took place at a University Hospital in southern Sweden. Interviews were carried out with 10 mothers, eight fathers, four patients and two siblings from a total of 10 families. The interviews were analysed with a hermeneutical phenomenological approach. One essential theme emerged from their stories, ‘returning to a changed ordinary life – incorporating a trying and contradictory experience’. The families felt relieved that the treatment was over yet they experienced strains in their daily life. Family members felt changed and especially the parents needed to focus on themselves in order to recover. Closeness with other people, especially their own family, was important. The previously sick children felt a loss of concern from their parents when treatment had ended, in contrast to siblings who experienced increased attention from their parents. Parents experienced being in uncharted territory and sometimes missed the security of hospital. For professionals it is important to offer the family a structured follow-up to help them in their daily life after the child's treatment is completed.

  • 6.
    Björk, Maria
    et al.
    Division of Nursing, Department of Health Sciences, Lund University, Lund, Sweden.
    Nordström, Berit
    Division of Nursing, Department of Health Sciences, Lund University, Lund, Sweden.
    Hallström, Inger
    Division of Nursing, Department of Health Sciences, Lund University, Lund, Sweden / Vårdal Institute, Lund University.
    Needs of young children with cancer during their initial hospitalization: An observational study2006In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 23, no 4, p. 210-219Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to describe young (under the age of 7) children's needs as expressed by their behavior, body language and verbal expression through observations during their initial hospitalization after being diagnosed with cancer. Twelve children under the age of seven were followed during 26 hours with non-participant unstructured observations. Field notes were written after each observation and transcribed into a narrative text, which was analyzed by content analysis at both manifest and latent level. Five themes were identified, of which "need to have the parent close by" was the most prominent. The other themes were "need to play and feel joy," "need for participation in care and treatment," "need for a good relationship with the staff," and "need for physical and emotional satisfaction." The results indicate that the children needed their parents and the parents' presence helped the children to express other needs. Professionals need to support the child and his or her parents so that the parents in their turn can support and alleviate their child's hospitalization and cancer treatment. © 2006 by Association of Pediatric Oncology Nurses.

  • 7.
    Björk, Maria
    et al.
    Lund University, Department of Health Sciences, Lund, Sweden.
    Nordström, Berit
    Lund University, Department of Health Sciences, Lund, Sweden.
    Wiebe, Thomas
    Lund University Hospital, Department of Pediatrics, Lund, Sweden.
    Hallström, Inger
    Lund University, Department of Health Sciences, The Vårdal Institute, Lund, Sweden.
    Living With Childhood Cancer - Family Members' Experiences and Needs2009In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 13, no 1, p. 60-60Article in journal (Other academic)
  • 8.
    Björk, Maria
    et al.
    University of Skövde, School of Health and Education. University of Skövde, Health and Education. CHILD Research Group, Department of Nursing Science, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Sundler, Annelie J.
    University of Skövde, School of Health and Education. University of Skövde, Health and Education. Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden.
    Hallström, Inger
    Department of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
    Hammarlund, Kina
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Like being covered in a wet and dark blanket: Parents' lived experiences of losing a child to cancer2016In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 25, p. 40-45Article in journal (Refereed)
    Abstract [en]

    Purpose: The aim of this study was to illuminate parents' lived experiences of losing a child to cancer. Method: Interviews and a narrative about parents' experiences of losing a child to cancer were gathered from six parents of children whom had participated in a longitudinal study across the child's illness trajectory. The analysis of the data was inspired by van Manen's hermeneutic phenomenological approach. Results: One essential theme emerged: Like being covered in a wet and dark blanket, as well as six related themes: Feeling conflicting emotions, Preparing for the moment of death, Continuing parenting after death, Recollecting and sharing memories, Working through the sorrow and New perspectives in life. Conclusion: There is a need for good palliative care. If not, there is a risk that the parent will perseverate and blame themselves for not being a good parent during the suffering child's last time in life. Meetings with the parents six months and two years after the child's death might facilitate healing through the grief process. 

  • 9.
    Björk, Maria
    et al.
    University of Skövde, School of Life Sciences.
    Thelin, Anna
    Ryhov Hospital, Jönköping.
    Peterson, Inger
    Ryhov Hospital, Jönköping.
    Hammarlund, Kina
    University of Skövde, School of Life Sciences.
    A journey filled with emotions - mothers' experiences of breastfeeding their preterm infant in a Swedish neonatal ward2012In: Breastfeeding Review, ISSN 0729-2759, Vol. 20, no 1, p. 25-31Article in journal (Refereed)
    Abstract [en]

    The study took place in a 10-bed neonatal ward in a hospital in the south of Sweden and includes mothers having given birth to a preterm infant born before the 37th week of gestation. The aim of the study was to illuminate mothers' experiences of breastfeeding a preterm infant in a neonatal ward. Data collection includes written protocols from twelve mothers. These protocols were analysed thematically. The results indicated that the mothers should be offered a private place where they can breastfeed or express breastmilk, and that the breastmilk should not be placed in a shared area. The mothers described that they did not want to be separated from their preterm infant during the night. Finally, they also pointed out the importance of support from the health professionals for establishing an exclusive breastfeeding regime.

  • 10.
    Björk, Maria
    et al.
    Division of Nursing, Department of Health Sciences, Lund University, Lund, Sweden / Department of Pediatrics, Lund University Hospital, Lund, Sweden / Division of Nursing, Department of Health Sciences/The Vårdal institute, Lund University, Lund, Sweden.
    Wiebe, Thomas
    Division of Nursing, Department of Health Sciences, Lund University, Lund, Sweden / Department of Pediatrics, Lund University Hospital, Lund, Sweden / Division of Nursing, Department of Health Sciences/The Vårdal institute, Lund University, Lund, Sweden.
    Hallström, Inger
    Division of Nursing, Department of Health Sciences, Lund University, Lund, Sweden / Department of Pediatrics, Lund University Hospital, Lund, Sweden / Division of Nursing, Department of Health Sciences/The Vårdal institute, Lund University, Lund, Sweden.
    An Everyday Struggle - Swedish Families' Lived Experiences During a Child's Cancer Treatment2009In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 24, no 5, p. 423-432Article in journal (Refereed)
    Abstract [en]

    The aim was to elucidate families' lived experience during a child's cancer treatment. Interviews were conducted with members of 11 affected families. A hermeneutical phenomenological approach was chosen. "Focus on the ill child-An everyday struggle" emerged as an essential theme. The families' lived experience of daily life was described as "feeling drained," "disrupting family life," "feeling locked up and isolated," "retaining normality," "becoming experts," and "changing perspectives." The result indicates that life during a child's cancer treatment is a taxing period and that the entire family is in need of support to ease their burdens. © 2009 Elsevier Inc. All rights reserved.

  • 11.
    Björk, Maria
    et al.
    Department of Nursing, Lund University, Sweden.
    Wiebe, Thomas
    Department of Pediatrics, Lund University Hospital, Lund, Sweden.
    Hallström, Inger
    Department of Nursing/the Vårdal Institute, Lund University, Lund, Sweden.
    Striving to survive: Families' lived experiences when a child is diagnosed with cancer2005In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 22, no 5, p. 265-275Article in journal (Refereed)
    Abstract [en]

    When a child is ill with cancer, this affects the whole family for long periods. The aim of this study was to elucidate the family's lived experience when a child in the family was diagnosed with cancer. A descriptive inductive design with a hermeneutic phenomenological approach including interviews with 17 families (parents, children, and siblings) was chosen. The families' lived experience was described as a 2-fold essential theme comprising "a broken life world" and an immediate "striving to survive." The families' secure everyday life disappeared and was replaced by fear, chaos, and loneliness. When striving to make the child and the family survive, family members strove to feel hope and have a positive focus, to gain control, and to feel close to other people. Phenomenological human science research can deepen the understanding of the meaning of being a family with a child who is ill with cancer and can help pediatric oncology staff become increasingly thoughtful, and thus better prepared to take action to diminish the chaos occurring in the family. © 2005 by Association of Pediatric Oncology Nurses.

  • 12.
    Darcy, Laura
    et al.
    Department of Nursing Sciences, CHILD Research Group, School of Health Sciences, Jönköping University, Jönköping, Sweden / School of Health Sciences, University College Borås, Borås, Sweden.
    Björk, Maria
    University of Skövde, School of Health and Education. University of Skövde, Health and Education. Department of Nursing Sciences, CHILD Research Group, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Enskär, Karin
    Department of Nursing Sciences, CHILD Research Group, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Knutsson, Susanne
    Department of Nursing Sciences, CHILD Research Group, School of Health Sciences, Jönköping University, Jönköping, Sweden / School of Health Sciences, University College Borås, Borås, Sweden.
    The process of striving for an ordinary, everyday life, in young children living with cancer, at six months and one year post diagnosis2014In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 18, no 6, p. 605-612Article in journal (Refereed)
    Abstract [en]

    PURPOSE: Health care focus is shifting from solely looking at surviving cancer to elements of attention relating to living with it on a daily basis.The young child's experiences are crucial to providing evidence based care. The aim of this study was to explore the everyday life of young children as expressed by the child and parents at six months and one year post diagnosis.

    METHODS: Interviews were conducted with children and their parents connected to a paediatric oncology unit in Southern Sweden. A qualitative content analysis of interview data from two time points, six months and one year post diagnosis, was carried out.

    RESULTS: The process of living with cancer at six months and at one year post diagnosis revealed the child's striving for an ordinary, everyday life. Experiences over time of gaining control, making a normality of the illness and treatment and feeling lonely were described.

    CONCLUSION: Nurses have a major role to play in the process of striving for a new normal in the world post-diagnosis, and provide essential roles by giving the young child information, making them participatory in their care and encouraging access to both parents and peers. Understanding this role and addressing these issues regularly can assist the young child in the transition to living with cancer. Longitudinal studies with young children are vital in capturing their experiences through the cancer trajectory and necessary to ensure quality care.

  • 13.
    Darcy, Laura
    et al.
    Jönköping University, Jönköping, Sweden / University of Borås, Borås, Sweden.
    Björk, Maria
    University of Skövde, School of Health and Education. University of Skövde, Health and Education. Jönköping University, Jönköping, Sweden.
    Knutsson, Susanne
    Jönköping University, Jönköping, Sweden / University of Borås, Borås, Sweden.
    Granlund, Mats
    Jönköping University, Jönköping, Sweden.
    Enskär, Karin
    Jönköping University, Jönköping, Sweden.
    Following Young Children's Health and Functioning in Everyday Life Through Their Cancer Trajectory2016In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 33, no 3, p. 173-189Article in journal (Refereed)
    Abstract [en]

    Background: Knowledge of living with childhood cancer, through the trajectory, is sparse. Aim: The aim of this study was to follow young children's health and functioning in everyday life through their cancer trajectory. Methods: Data were gathered longitudinally from a group of 13 young children and their parents connected to a pediatric oncology unit in Sweden. The International Classification of Functioning, Disability and Health for Children and Youth structure was used to identify difficulties in health and functioning in everyday life, in interview and questionnaire data. Descriptive statistical analysis was performed to show patterns of difficulty over a 3-year period from diagnosis. Results: Difficulties experienced by children declined and changed over time. An increase in difficulties with personal interactions with others and access to and support from health care professionals was seen 2 to 3 years after diagnosis and start of treatment. Similar patterns are seen within individual children's trajectories in relation to diagnosis but individual patterns were seen for each child. Conclusions and Clinical Implications: Health care professionals need to plan for ongoing contact with school services and information and support pathways, beyond the treatment period. A person-centered philosophy of care is required throughout the cancer trajectory.

  • 14.
    Darcy, Laura
    et al.
    CHILD Research Group, School of Health Sciences, Jönköping University, Jönköping, Sweden / School of Health Sciences, University College Borås, Borås, Sweden.
    Enskär, Karin
    CHILD Research Group, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Granlund, M.
    CHILD Research Group, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Simeonsson, R. J.
    CHILD Research Group, School of Health Sciences, Jönköping University, Jönköping, Sweden / School of Psychology and Early Childhood Education, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
    Peterson, C.
    CHILD Research Group, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Björk, Maria
    University of Skövde, School of Health and Education. University of Skövde, Health and Education. CHILD Research Group, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Health and functioning in the everyday lives of young children with cancer: documenting with the International Classification of Functioning, Disability and Health - Children and Youth (ICF-CY)2015In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 41, no 3, p. 475-482Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Health care focus is shifting for children from surviving childhood cancer to living with it on a daily basis. There is a need to document health and function in the everyday lives of young children with cancer using the multidimensional framework and language of the International Classification of Functioning, Disability and Health - Children and Youth (ICF-CY).

    AIMS: The aims of this study were (1) to document health and functioning in the everyday lives of young children with cancer using ICF-CY codes and (2) to identify a comprehensive code set that can aid clinical assessment.

    METHOD: Interviews with children diagnosed with cancer and their parents, were transcribed, reviewed for content and coded to the ICF-CY using linking procedures.

    RESULTS: A comprehensive code set (n = 70) for childhood cancer was identified. The majority of content identified to codes was related to activity and participation describing social relations with family, peers and professionals, preschool attendance and play, as well as issues related to support and independence.

    CONCLUSIONS: The ICF-CY can be used to document the nature and range of characteristics and consequences of cancer experienced by children. The identified comprehensive code set could be helpful to health care professionals, parents and teachers in assessing and supporting young children's health and everyday life through the cancer trajectory. The comprehensive code set could be developed as a clinical assessment tool for those caring for young children with cancer. The universal language of the ICF-CY means that the utility of a clinical assessment tool based on identified codes can have wide reaching effects for the care of young children with cancer.

  • 15.
    Enskär, Karin
    et al.
    Jönköping Univ, Sch Hlth Sci, Jönköping, Sweden / Jönköping Univ, CHILD Res Grp, Jönköping, Sweden.
    Björk, Maria
    University of Skövde, School of Health and Education. University of Skövde, Health and Education. Jönköping Univ, CHILD Res Grp, Jönköping, Sweden.
    Knutsson, Susanne
    Jönköping Univ, Sch Hlth Sci, Jönköping, Sweden / Univ Coll Borås, Dept Hlth Sci, Borås, Sweden.
    Granlund, Mats
    Jönköping Univ, Sch Hlth Sci, Jönköping, Sweden / Jönköping Univ, CHILD Res Grp, Jönköping, Sweden..
    Darcy, Laura
    Jönköping Univ, CHILD Res Grp, Jönköping, Sweden / Univ Coll Borås, Dept Hlth Sci, Borås, Sweden.
    Huus, Karina
    Jönköping Univ, Sch Hlth Sci, Jönköping, Sweden / Jönköping Univ, CHILD Res Grp, Jönköping, Sweden.
    A Swedish perspective on nursing and psychosocial research in paediatric oncology: A literature review2015In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 19, no 3, p. 310-317Article in journal (Refereed)
    Abstract [en]

    Purpose: A dramatic improvement in outcomes of survival rates of childhood cancer has been seen. Caring science research is central in providing skills and knowledge to the health care sector, but few overviews of the content of published research have been carried out. The aim of this review was to investigate the content and methodology of published studies in paediatric oncology relevant to caring science, and also to compare possible differences in content and method of the published studies from the nursing and psychosocial perspectives. Method: A systematic literature review was performed of 137 published articles on paediatric oncology relevant to caring science in Sweden. Results: The results show that most of the studies were descriptive or comparative ones with a quantitative design. Most of them focused on parents (43%) or children (28%). Most of the studies investigated wellbeing (88%), using questionnaires (54%) or interviews (38%). Several different measurement instruments had been used. While the results were often clearly presented, the clinical implications were more diffuse. The most acknowledged research fund was the Swedish Childhood Foundation (75%). Conclusions: To reflect the children' perspectives in paediatric oncology require that future researchers take on the challenge of including children (even young ones) in research. The use of a limited number of agreed measurement instruments is desirable. The biggest challenge for the future is to make a shift from explorative to intervention studies. There is an urgent need to transform research results into clinical practice. (C) 2014 Elsevier Ltd. All rights reserved.

  • 16.
    Enskär, Karin
    et al.
    School of Health Sciences, Jönköping University, Sweden / CHILD Research Group, Jönköping University, Sweden.
    Huus, Karina
    School of Health Sciences, Jönköping University, Sweden / CHILD Research Group, Jönköping University, Sweden.
    Björk, Maria
    University of Skövde, School of Health and Education. University of Skövde, Health and Education. CHILD Research Group, Jönköping University, Sweden.
    Granlund, Mats
    School of Health Sciences, Jönköping University, Sweden / CHILD Research Group, Jönköping University, Sweden.
    Darcy, Laura
    CHILD Research Group, Jönköping University, Sweden / Institution of Health Science, University College of Borås, Sweden.
    Knutsson, Susanne
    School of Health Sciences, Jönköping University, Sweden / Institution of Health Science, University College of Borås, Sweden.
    An Analytic Review of Clinical Implications From Nursing and Psychosocial Research Within Swedish Pediatric Oncology2015In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 30, no 4, p. 550-559Article in journal (Refereed)
    Abstract [en]

    The publisher regrets that this article has been temporarily removed. A replacement will appear as soon as possible in which the reason for the removal of the article will be specified, or the article will be reinstated. The full Elsevier Policy on Article Withdrawal can be found at http://www.elsevier.com/locate/withdrawalpolicy.

  • 17.
    Henoch, Ingela
    et al.
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg.
    Browall, Maria
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Melin-Johansson, Christina
    Department of Health Sciences, Mid Sweden University, Östersund.
    Danielson, Ella
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg / Department of Health Sciences, Mid Sweden University, Östersund.
    Udo, Camilla
    Department of Health Sciences, Mid Sweden University, Östersund.
    Johansson Sundler, Annelie
    University of Skövde, School of Health and Education.
    Björk, Maria
    University of Skövde, School of Health and Education.
    Ek, Kristina
    University of Skövde, School of Health and Education.
    Hammarlund, Kina
    University of Skövde, School of Health and Education.
    Bergh, Ingrid
    University of Skövde, School of Health and Education.
    Strang, Susann
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg / Angered Local Hospital, Gothenburg, Sweden.
    The Swedish version of the Frommelt attitude toward care of the dying scale: Aspects of validity and factors influencing nurses' and nursing students' attitudes2014In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 37, no 1, p. E1-E11Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Nurses' attitudes toward caring for dying persons need to be explored. The Frommelt Attitude Toward Care of the Dying (FATCOD) scale has not previously been used in Swedish language. OBJECTIVES: The objectives of this study were to compare FATCOD scores among Swedish nurses and nursing students with those from other languages, to explore the existence of 2 subscales, and to evaluate influences of experiences on attitudes toward care of dying patients. METHODS: A descriptive, cross-sectional, and predictive design was used. The FATCOD scores of Swedish nurses from hospice, oncology, surgery clinics, and palliative home care and nursing students were compared with published scores from the United States, Israel, and Japan. Descriptive statistics, t tests, and factor and regression analyses were used. RESULTS: The sample consisted of 213 persons: 71 registered nurses, 42 enrolled nurses, and 100 nursing students. Swedish FATCOD mean scores did not differ from published means from the United States and Israel, but were significantly more positive than Japanese means. In line with Japanese studies, factor analyses yielded a 2-factor solution. Total FATCOD and subscales had low Cronbach α's. Hospice and palliative team nurses were more positive than oncology and surgery nurses to care for dying patients. CONCLUSIONS: Although our results suggest that the Swedish FATCOD may comprise 2 distinct scales, the total scale may be the most adequate and applicable for use in Sweden. Professional experience was associated with nurses' attitudes toward caring for dying patients. IMPLICATION FOR PRACTICE: Care culture might influence nurses' attitudes toward caring for dying patients; the benefits of education need to be explored.

  • 18.
    Larsson, Margaretha
    et al.
    University of Skövde, School of Health and Education. Linnæus University, Växjö, Sweden.
    Björk, Maria
    University of Skövde, School of Health and Education. CHILD Research Group, Department of Nursing Science, School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Ekebergh, Margaretha
    Linnæus University, Växjö, Sweden.
    Johansson Sundler, Annelie
    University of Skövde, School of Health and Education.
    Striving to Make a Positive Difference: School Nurses’ Experiences of Promoting the Health and Well-Being of Adolescent Girls2014In: Journal of School Nursing, ISSN 1059-8405, E-ISSN 1546-8364, Vol. 30, no 5, p. 358-365Article in journal (Refereed)
    Abstract [en]

    In Sweden, school nurses are part of the School Health Service with the main objective of health promotion to support students’ health and attainment of educational goals. The aim in this phenomenological study was to illuminate the experiences of school nurses in promoting the health and well-being of adolescent girls. Seventeen school nurses were interviewed, both in groups and individually, to facilitate personal disclosure and expressions from their lived experiences. To achieve their goal of improving the health of adolescent girls, school nurses require flexibility in their approach and in endeavoring to make a positive difference they experience many challenges. This study concluded that school nurses can tactfully provide adolescent girls with knowledge and health guidance adjusted to individual needs and empowering the individual girl to participate in her own health process.

  • 19.
    Larsson, Margaretha
    et al.
    University of Skövde, School of Health and Education. University of Skövde, Health and Education. Faculty of Health and Life Sciences, Linnaeus University of Växjö, Växjö, Sweden.
    Sundler, Annelie Johansson
    University of Skövde, School of Health and Education. University of Skövde, Health and Education. School of Health, Care and Social Welfare, Mälardalens University, Västerås, Sweden.
    Ekebergh, Margaretha
    Faculty of Health and Life Sciences, Linnaeus University of Växjö, Växjö, Sweden.
    Björk, Maria
    University of Skövde, School of Health and Education. University of Skövde, Health and Education. The Research Group CHILD, Jönköping University, Jönköping, Sweden.
    Altering the Parenting Role: Parents' Experience of Supporting the Health and Well-Being of Their Adolescent Girls2015In: Child and Youth Care Forum, ISSN 1053-1890, E-ISSN 1573-3319, Vol. 44, no 3, p. 419-432Article in journal (Refereed)
    Abstract [en]

    Background

    In research the relationships between parents and their adolescent daughters have been viewed from problem oriented perspectives, usually exploring negative effects and health-related problems. Health and well-being are complex phenomena and knowledge is needed on how parents can support the health and well-being of their daughter.

    Objectives

    The aim of this study was to illuminate parents’ experiences of supporting the health and well-being of their adolescent girls.

    Methods

    A descriptive design with a phenomenological approach including interviews, individually or in group with ten mothers and five fathers was conducted.

    Results

    Supporting the health and well-being of adolescent girls was experienced as challenging. The parents needed to altering the parenting role: from being the one who had previously set the limits they needed to rethink and be available for support. In this process interplay, communication and trust were important to support the health and well-being of the girls in an efficient way. This meaning was further illuminated by four constituents: Balancing the need for control, maintaining a trusting relationship, interplay to facilitate their daughters’ transition to independence, and an ambiguous parenting role.

    Conclusions

    This study highlights the importance of parents being involved in the everyday life of their adolescent daughter to support her health and well-being. The parents’ ability to contribute to the health and well-being of their girl seemed in this study dependent on their ability to communicate and alter the parenting role with sensitivity to the lifeworld of the adolescent girl.

  • 20.
    Ringnér, Anders
    et al.
    Department of Nursing, Umeå University, Umeå, Sweden.
    Öster, Inger
    Umeå University, Umeå, Sweden.
    Björk, Maria
    University of Skövde, School of Life Sciences.
    Graneheim, Ulla H.
    Umeå University, Umeå, Sweden.
    Talking via the child: Discursively Created Interaction Between Parents and Health Care Professionals at a Pediatric Oncology Ward2013In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 19, no 1, p. 29-52Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to describe discursively constructed interactions between parents and health care professionals (HCPs) in a pediatric oncology ward. Field notes from 70 focused participant observations and 16 informal interviews with 25 HCPs interacting with 25 parents of children with cancer were analyzed using discursive psychology. Six dominant interpretative repertoires (flexible parts of discourses used in everyday interaction) were found. Repertoires used by the HCPs were child, parent, or family oriented, mirroring the primary focus of the interaction. Parents used a spokesperson repertoire to use their own expertise to talk on behalf of the child; an observer repertoire, in which they kept in the background and interfered only when needed; or a family member repertoire to position themselves on a level equal to the ill child. The results are discussed in relation to philosophies influencing pediatric nursing, such as family-centered nursing and child-centered nursing.

  • 21.
    Sundler, Annelie Johansson
    et al.
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Björk, Maria
    University of Skövde, School of Health and Education. University of Skövde, Health and Education.
    Bisholt, Birgitta
    Department of Health Sciences, Karlstad University, Karlstad, Sweden.
    Ohlsson, Ulla
    School of Health and Medical Sciences, Örebro University, Örebro, Sweden.
    Kullén Engström, Agneta
    School of Health, University of Borås, Borås, Sweden.
    Gustafsson, Margareta
    School of Health and Medical Sciences, Örebro University, Örebro, Sweden.
    Student nurses' experiences of the clinical learning environment in relation to the organization of supervision: A questionnaire survey2014In: Nurse Education Today, ISSN 0260-6917, E-ISSN 1532-2793, Vol. 34, no 4, p. 661-666Article in journal (Refereed)
    Abstract [en]

    Aim: The aim was to investigate student nurses' experiences of the clinical learning environment in relation to how the supervision was organized. Background: The clinical environment plays an essential part in student nurses' learning. Even though different models for supervision have been previously set forth, it has been stressed that there is a need both of further empirical studies on the role of preceptorship in undergraduate nursing education and of studies comparing different models. Method: A cross-sectional study with comparative design was carried out with a mixed method approach. Data were collected from student nurses in the final term of the nursing programme at three universities in Sweden by means of a questionnaire. Results: In general the students had positive experiences of the clinical learning environment with respect to pedagogical atmosphere, leadership style of the ward manager, premises of nursing, supervisory relationship, and role of the nurse preceptor and nurse teacher. However, there were significant differences in their ratings of the supervisory relationship (p < 0.001) and the pedagogical atmosphere (p 0.025) depending on how the supervision was organized. Students who had the same preceptor all the time were more satisfied with the supervisory relationship than were those who had different preceptors each day. Students' comments on the supervision confirmed the significance of the preceptor and the supervisory relationship. Conclusion: The organization of the supervision was of significance with regard to the pedagogical atmosphere and the students' relation to preceptors. Students with the same preceptor throughout were more positive concerning the supervisory relationship and the pedagogical atmosphere.

  • 22.
    Sundler, Annelie Johansson
    et al.
    University of Skövde, School of Life Sciences.
    Hallström, Inger
    Lund University, Lund, Sweden.
    Hammarlund, Kina
    University of Skövde, School of Life Sciences.
    Björk, Maria
    University of Skövde, School of Life Sciences.
    Living an Everyday Life Through a Child's Cancer Trajectory: Families' Lived Experiences 7 Years After Diagnosis2013In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 30, no 6, p. 293-300Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to illuminate the lived experiences of families where a child had survived 7 years from a diagnosis of childhood cancer. This article describes one part of an inductive and longitudinal research project that included 17 families. Four families whose child was diagnosed with cancer 7 years previously were interviewed using a hermeneutical phenomenological approach. The families lived experience was described in one essential theme, "Living an everyday life through the child's cancer trajectory," further illuminated in 3 related themes: "Leaving the disease behind yet feeling its presence," "Being the same yet always different," and "Feeling stronger yet vulnerable." The results suggest that family members feel vulnerable even if a long period of time has passed since completion of treatment. To varied degrees they still may need support. When moving forward in life, the family members are helped if they can reconcile their memories and experiences derived from the childhood cancer trajectory. © 2013 by Association of Pediatric Hematology/Oncology Nurses.

1 - 22 of 22
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