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  • 1.
    Pietilä Rosendahl, Sirpa
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Division of Caring Sciences, Eskilstuna, Sweden.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Division of Caring Sciences, Eskilstuna, Sweden.
    Mazaheri, Monir
    Mälardalen University, School of Health, Care and Social Welfare, Division of Caring Sciences, Eskilstuna, Sweden / Faculty of Nursing and Midwifery, Tehran University of Medical Sciences, Iran.
    Immigrants with dementia in Swedish residential care: An exploratory study of the experiences of their family members and nursing staff2016In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 16, no 18, p. 1-12, article id 200Article in journal (Refereed)
    Abstract [en]

    Background

    Worldwide, there is a growing population of older people who develop dementia in a country other than that of their origin. When their dementia has reached an advanced stage, residential care is most often needed. People with dementia in Sweden are often cared for in group homes. For immigrants, this may mean a linguistically challenging care environment for both healthcare staff and the patients’ family members.

    The aim of this study was to explore and describe the experiences of family members and professional caregivers regarding the care provided to immigrants with dementia in group homes in Sweden.

    Methods

    An exploratory, descriptive study with a qualitative approach was chosen. In-depth semi-structured interviews were conducted with nine professional caregivers and five family members of people with dementia with Finnish, Estonian, Hungarian and Ingrian backgrounds; all were chosen purposefully. All people with dementia had lost their Swedish language skills as their second language. The data was analysed using qualitative content analysis.

    Results

    Three main categories and seven subcategories were identified. The first main category: A new living situation comprised the subcategories: adjusting to new living arrangements and expectations regarding activities and traditional food at the group home, the second main category: Challenges in communication with the subcategories: limited communication between the immigrant with dementia and the Swedish-speaking nursing staff and the consequences of linguistic misunderstandings and nuanced communication in a common language and the third main category: The role of the family member at the group home with the subcategories: a link to the healthy life story of the family member with dementia andan expert and interpreter for the nursing staff.

    Conclusions

    The family member played a crucial role in the lives of immigrants with dementia living in a group home by facilitating communication between the nursing staff and the PWD and also by making it possible for PWD to access the cultural activities they wanted and which professional caregivers were either not able to recognise as needed or could not deliver.

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