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  • 1.
    Berglund, Mia M. U.
    Högskolan i Skövde, Institutionen för hälsa och lärande.
    Learning turning points - in life with long-term illness - visualized with the help of the life-world philosophy2014Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 9, artikkel-id 22842Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    A long-term illness is an occurrence that changes one’s life and generates a need to learn how to live with it. This article is based on an empirical study of interviews on people living with different long-term illnesses. The results have shown that the learning process is a complex phenomenon interwoven with life as a whole. The essential meaning of learning to live with long-term illness concerns a movement toward a change of understanding of access to the world. In this movement, in which everyday lives as well as relationships with oneself and others are affected, a continual renegotiation is needed. Texts from existential/lifeworld philosopher, Heidegger and Gadamer, have been used to get a greater understanding of the empirical results. These texts have been analysed with particular focus on learning turning points and the importance of reflection. The results are highlighted under the following themes: Pursuit of balance*the aim of learning, The tense grip*the resistance to learning, To live more really*the possibilities of the learning, Distancing*the how of the learning, and The tense of the learning*the whole of the learning. In those learning turning points are present. Knowledge from this study has been used to make a didactic model designed to give caregivers a tool to support patients’ learning. The didactic model is called: The challenge to take charge of life with a long-term illness.

    Fulltekst (pdf)
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  • 2.
    Berglund, Mia
    et al.
    Högskolan i Skövde, Institutionen för vård och natur.
    Westin, Lars
    Högskolan i Skövde, Institutionen för vård och natur.
    Svanström, Rune
    Högskolan i Skövde, Institutionen för vård och natur.
    Johansson Sundler, Annelie
    Högskolan i Skövde, Institutionen för vård och natur.
    Suffering caused by care - Patients' experiences from hospital settings2012Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 7, artikkel-id 18688Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Suffering and well-being are significant aspects of human existence; in particular, suffering and well-being are important aspects of patients’ experiences following diseases. Increased knowledge about existential dimensions of illness and healthcare experiences may be needed in order to improve care and reduce unnecessary suffering. Therefore, the aim of this paper is to illuminate the phenomenon of suffering experienced in relation to healthcare needs among patients in hospital settings in Sweden. In this study, we used a reflective lifeworld approach. The data were analysed with a focus on meanings. The results describe the essential meaning of the phenomenon of suffering in relation to healthcare needs. The patients were suffering during care-giving when they felt distrusted or mistreated and when their perspective on illness and health was overlooked. Suffering was found to arise due to healthcare actions that neglected a holistic and patient-centred approach to care. Unfortunately, healthcare experiences that cause patients to suffer seem to be something one needs to endure without being critical. The phenomenon can be described as having four constituents: to be mistreated; to struggle for one’s healthcare needs and autonomy; to feel powerless; and to feel fragmented and objectified. The study concludes that there are problems associated with patients experiencing suffering at the hands of healthcare providers, even if this suffering may not have been caused deliberately to the patient. Consequently, conscious improvements are needed to lessen the suffering caused by care-giving, as are strategies that promote more patient-centred care and patient participation.

    Fulltekst (pdf)
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  • 3.
    Browall, Maria
    et al.
    Högskolan i Skövde, Institutionen för vård och natur. Division of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Stockholm, Sweden.
    Koinberg, Ingalill
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Falk, Hanna
    Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Wijk, Helle
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden / Institution of Caring Science, Sahlgrenska Academy, Sahlgrenska University Hospital, Gothenburg, Sweden.
    Patients' experience of important factors in the healthcare environment in oncology care2013Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 8, nr 1, artikkel-id 20870Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background and objective. The aim of this study was to describe what factors of the healthcare environment are perceived as being important to patients in oncology care. Design. A qualitative design was adopted using focus group interviews. Setting and participants. The sample was 11 patients with different cancer diagnoses in an oncology ward at a university hospital in west Sweden. Results. Analysis of the patients' perceptions of the environment indicated a complex entity comprising several aspects. These came together in a structure consisting of three main categories: safety, partnership with the staff, and physical space. The care environment is perceived as a complex entity, made up of several physical and psychosocial aspects, where the physical factors are subordinated by the psychosocial factors. It is clearly demonstrated that the patients' primary desire was a psychosocial environment where they were seen as a unique person; the patients wanted opportunities for good encounters with staff, fellow patients, and family members, supported by a good physical environment; and the patients valued highly a place to withdraw and rest. Conclusions. This study presents those attributes that are valued by cancer patients as crucial and important for the support of their well-being and functioning. The results show that physical aspects were subordinate to psychosocial factors, which emerged strongly as being the most important in a caring environment. © 2013 M. Browall et al.

  • 4.
    Gillsjö, Catharina
    et al.
    Högskolan i Skövde, Institutionen för hälsovetenskaper. Högskolan i Skövde, Forskningsmiljön hälsa, hållbarhet och digitalisering. College of Nursing, University of Rhode Island, United States.
    Nyström, Maria
    Faculty of Caring Science, Work Life and Social Welfare, Department of Caring Science, University of Borås, Sweden.
    Palmér, Lina
    Faculty of Caring Science, Work Life and Social Welfare, Department of Caring Science, University of Borås, Sweden.
    Carlsson, Gunilla
    Faculty of Caring Science, Work Life and Social Welfare, Department of Caring Science, University of Borås, Sweden.
    Dalheim-Englund, Ann-Charlotte
    Faculty of Caring Science, Work Life and Social Welfare, Department of Caring Science, University of Borås, Sweden.
    Eriksson, Irene
    Högskolan i Skövde, Institutionen för hälsovetenskaper. Högskolan i Skövde, Forskningsmiljön hälsa, hållbarhet och digitalisering.
    Balance in life as a prerequisite for community-dwelling older adults’ sense of health and well-being after retirement: an interview-based study2021Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 16, nr 1, artikkel-id 1984376Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Purpose: This study aimed to describe community-dwelling older adults’ perceptions of health and well-being in life after retirement. Methods: This study is part of a larger project using a mixed-methods design to address lifestyles’ influence on community-dwelling older adults’ health. Individual semi-structured interviews were conducted with 18 older adults in age 70 to 95 years. Data were analysed according to a phenomenographic approach. Results: The results encompass four categories describing variations in community-dwelling older adults’ perceptions of health and well-being after retirement: feeling well despite illness and disease, interacting with and being useful for oneself and others, independently embracing opportunities and engaging in life, and maintaining a healthy lifestyle. Conclusions: The absence of illness and disease is not a clear prerequisite for a sense of health and well-being. To promote and preserve health and well-being after retirement, older adults strived for—and coached themselves to uphold—a balance in life, focusing on not burdening others. This life orientation after retirement must be acknowledged by society at large, especially from an ageist perspective, and in health and social care to preserve and promote health and well-being. 

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  • 5.
    Hammarlund, Kina
    et al.
    Högskolan i Skövde, Institutionen för vård och natur. Växjö University, Sweden.
    Lundgren, Ingela
    Borås University College, Sweden / Växjö University, Sweden.
    Nyström, Maria
    Borås University College, Sweden / Växjö University, Sweden.
    In the heat of the night, it is difficult to get it right: teenagers' attitudes and values towards sexual risk-taking2008Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 3, nr 2, s. 103-112Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This study, using a hermeneutic approach, is based on data from four focus group interviews with 25 Swedish teenagers participating, ranging from 18-19 years of age. The aim is to gain a deeper understanding of teenagers' values and attitudes towards sexually transmitted infections (STIs) and sexual risk-taking. The teenagers seem to seek an excuse to fend off responsibility and deny their sexual risk-taking, an excuse provided by drunkenness. Under the influence of alcohol, teenagers are not too shy to have sex but remain embarrassed to talk about condom use. It seems as though the dialogue feels more intimate than the intercourse when it comes to protecting ones sexual health. To be able to act out in this sexual risk-taking the teenager often views the partner in a one-night-stand as an object, as opposed to a love relationship where they view their partner as subject, a person they care for. Engaging in sexual risk-taking often starts at a club where the teenagers go out to socialize and drink alcohol. They then play a game and a part of the game is to pretend that they do not play a game. In this game, certain rules are to be followed and the rules are set up by the girl, mainly to protect the romantic image of being carefully selected and thereby protected from being stigmatized as “sluts” or “whores”.

  • 6.
    Hellberg, Ingela
    et al.
    Department of Senior Care, Municipality of Lidköping, Lidköping, Sweden.
    Augustsson, Veronica
    Department of Senior Care, Municipality of Götene, Sweden.
    Hellström Muhli, Ulla
    Högskolan i Skövde, Institutionen för vård och natur.
    Seniors' experiences of living in special housing accommodation2011Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 6, nr 1, artikkel-id 5894Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This article presents a hermeneutic phenomenological analysis of interview material in which 12 seniors living in Special Housing Accommodation (SHA) facilities reflect on the experience of living in such facilities. Of particular interest in the analysis is living in a SHA as a phenomenon. The finding shows that the phenomenon of lived experience in a SHA seems to be a state of ambiguity regarding one’s existence, which is made up of several constituents (elements of meaning).The analysis contributes to the understanding of how the phenomenon of SHA living is coming into existence as a need, due to an individual’s failing health; however, the SHA is not considered to be a true home. Accordingly, this has consequences to the subject position for the seniors in that they have to navigate between existing and not existing. The seniors learn to cope with living in the SHA by lowering their expectations of life and existence while the SHA provides the prerequisites for their existence. An implication for promoting care is to support the seniors to enable a full existence of life within SHA living.

  • 7.
    Holm, Anna
    et al.
    Department of Anesthesiology and Intensive Care, Aarhus University Hospital, Aarhus N, Denmark.
    Karlsson, Veronika
    Department of Health Sciences, University West, Trollhättan, Sweden.
    Dreyer, Pia
    Department of Anesthesiology and Intensive Care, Aarhus University Hospital, Aarhus N, Denmark ; Department of Public Health, Section of Nursing Science, Aarhus University, Aarhus C, Denmark ; Department of Global Public Health and Primary Care, University of Bergen, Norway.
    Nurses’ experiences of serving as a communication guide and supporting the implementation of a communication intervention in the intensive care unit2021Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 16, nr 1, artikkel-id 1971598Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Purpose: To explore the experience of serving as a nurse communication guide, supporting the bottom-up implementation of a multi-component communication intervention prototype in the intensive care unit.

    Methods: The overall frame was Complex Interventions, and the study was conducted within the phenomenological-hermeneutic tradition. Semi-structured telephone interviews were conducted with eight nurse communication guides. Data were analysed using a Ricoeur-inspired interpretation method.

    Results: Two main themes emerged: 1) “The communication intervention components provided overview, a conceptual framework, awareness and room for reflection” and 2) “Being a communication guide illuminated the barriers and challenges of implementation”. Furthermore, a comprehensive understanding was established that illuminated experiences throughout the analysis: “An ICU communication intervention has to be adaptable to the specific situation and the double need for individualization but also provide overall guidance”.

    Conclusion: Findings showed that as communication is inherent to all human beings, it can be difficult to change the communication behaviour of nurses. Therefore, a communication intervention in the intensive care unit must be sensitive to the nurse communication guides’ individual communication style. Furthermore, a communication intervention should provide nurse communication guides with overall guidance while at the same time remaining adaptable to the needs of each specific situation.

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  • 8.
    Johansson, Annelie
    et al.
    Växjö University, Sweden / Department of Cardiology, Skaraborg Hospital, Skövde, Sweden.
    Ekebergh, Margaretha
    Växjö University, Sweden.
    The meaning of well-being and participation in the process of health and care - women's experiences following a myocardial infarction2006Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 1, nr 2, s. 100-108Artikkel i tidsskrift (Fagfellevurdert)
  • 9.
    Johansson, Karin
    et al.
    Department of Health and Care Sciences, Faculty of Health and Life Science, Linnaeus University, Växjö, Sweden / Department of Administration/Primary Care, Region Kronoberg County Council, Växjö, Sweden.
    Almerud Österberg, Sofia
    Department of Health and Care Sciences, Faculty of Health and Life Science, Linnaeus University, Växjö, Sweden.
    Leksell, Janeth
    School of Health and Social Sciences, University Dalarna, Falun, Sweden / Department of Medical Sciences, Uppsala University, Uppsala, Sweden.
    Berglund, Mia
    Högskolan i Skövde, Institutionen för hälsa och lärande. Högskolan i Skövde, Forskningsspecialiseringen Hälsa och Lärande.
    Manoeuvring between anxiety and control: Patients' experience of learning to live with diabetes: A lifeworld phenomenological study2015Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 10, artikkel-id 27147Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Research shows that people with diabetes want their lives to proceed as normally as possible, but some patients experience difficulty in reaching their desired goals with treatment. The learning process is a complex phenomenon interwoven into every facet of life. Patients and healthcare providers often have different perspectives in care which gives different expectations on what the patients need to learn and cope with. The aim of this study, therefore, is to describe the experience of learning to live with diabetes. Interviews were conducted with 12 patients afflicted with type 1 or type 2 diabetes. The interviews were then analysed with reference to the reflective lifeworld research approach. The analysis shows that when the afflicted realize that their bodies undergo changes and that blood sugar levels are not always balanced as earlier in life, they can adjust to their new conditions early. The afflicted must take responsibility for balancing their blood sugar levels and incorporating the illness into their lives. Achieving such goals necessitates knowledge. The search for knowledge and sensitivity to changes are constant requirements for people with diabetes. Learning is driven by the tension caused by the need for and dependence on safe blood sugar control, the fear of losing such control, and the fear of future complications. The most important responsibilities for these patients are aspiring to understand their bodies as lived bodies, ensuring safety and security, and acquiring the knowledge essential to making conscious choices.

    Fulltekst (pdf)
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  • 10.
    Johansson, Karin
    et al.
    Department of Health and Care Sciences, Faculty of Health and Life Science, Linnaeus University, Växjö, Sweden / Department of Administration, Kronoberg County Council, Växjö, Sweden / Primary Care, Region Kronoberg County Council, Växjö, Sweden.
    Almerud Österberg, Sofia
    Department of Health and Care Sciences, Faculty of Health and Life Science, Linnaeus University, Växjö, Sweden.
    Leksell, Janeth
    School of Health and Social Sciences, University Dalarna, Falun, Sweden / Department of Medical Sciences, Uppsala University, Uppsala, Sweden.
    Berglund, Mia
    Högskolan i Skövde, Forskningsspecialiseringen Hälsa och Lärande. Högskolan i Skövde, Institutionen för hälsa och lärande.
    Patients' experiences of support for learning to live with diabetes to promote health and well-being: A lifeworld phenomenological study2016Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 11, artikkel-id 31330Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Learning to live with diabetes in such a way that the new conditions will be a normal and natural part of life imposes requirements on the person living with diabetes. Previous studies have shown that there is no clear picture of what and how the learning that would allow persons to incorporate the illness into their everyday life will be supported. The aim of this study is to describe the phenomenon of support for learning to live with diabetes to promote health and well-being, from the patient’s perspective. Data were collected by interviews with patients living with type 1 or type 2 diabetes. The interviews were analysed using a reflective lifeworld approach. The results show that reflection plays a central role for patients with diabetes in achieving a new understanding of the health process, and awareness of their own responsibility was found to be the key factor for such a reflection. The constituents are responsibility creating curiosity and willpower, openness enabling support, technology verifying bodily feelings, a permissive climate providing for participation and exchanging experiences with others. The study concludes that the challenge for caregivers is to create interactions in an open learning climate that initiates and supports reflection to promote health and well-being.

    Fulltekst (pdf)
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  • 11.
    Kjellsdotter, Anna
    et al.
    Högskolan i Skövde, Institutionen för hälsovetenskaper. Högskolan i Skövde, Forskningsmiljön hälsa, hållbarhet och digitalisering. Skaraborg Hospital Skövde, Research and Development Centre, Skövde, Sweden.
    Berglund, Mia
    Högskolan i Skövde, Institutionen för hälsovetenskaper. Högskolan i Skövde, Forskningsmiljön hälsa, hållbarhet och digitalisering.
    Jebens, Elisabeth
    Primary Health Care Center, Stenstorp, Sweden.
    Kvick, Jennie
    Primary Health Care Center Mösseberg, Falköping, Sweden.
    Andersson, Susanne
    Department of Health Sciences, University West, Trollhättan, Sweden.
    To take charge of one's life - group-based education for patients with type 2 diabetes in primary care -a lifeworld approach2020Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 15, nr 1, artikkel-id 1726856Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: The number of people suffering from diabetes worldwide, including Sweden, has increased. To strengthen the patient's empowerment and thus improve their ability to take care of their own health, patient education in self-care management plays a central role in diabetes care. Purpose: The specific aim in this study was to describe patients' experiences of group-based education using the Taking charge of one's life with type 2 diabetes model. Methods: A qualitative approach with a phenomenological lifeworld perspective was used. The study was based on group and individual interviews and reflection books. Results: The group-based education model made it possible for the patients to learn through reflection concerning their own and others' experiences. The learning that occurred with support from the group reflections and the reflection books contributed to the understanding of the complexity of the illness. This increased the motivation and desire to be responsible for the treatment and implementation of habits. The group contributed to a sense of belonging and community that inspired a continued and active learning. Conclusion: The results showed that from the patients' perspective, this didactic model was both suitable and appreciated, supporting and facilitating learning.

    Fulltekst (pdf)
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  • 12.
    Larsson, Margaretha
    et al.
    Högskolan i Skövde, Institutionen för vård och natur.
    Johansson Sundler, Annelie
    Högskolan i Skövde, Institutionen för vård och natur.
    Ekebergh, Margaretha
    Linnæus University.
    The influence of living conditions on adolescent girls' health2012Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 7, s. 19059-Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Adolescence is described by the Swedish National Board of Health and Welfare as the healthiest period in life. However, adolescent girls differ in that they self-report that their health decreases with age. The aim of this hermeneutical study was to describe the meaning of living conditions in relation to adolescent girls' health. Guided by principles of reflective lifeworld research, 15 interviews with adolescent girls were analysed. The result section consists of four narratives with their existential interpretations illustrating different ways of approaching living conditions and their meaning for health and wellbeing. The narratives are: Approaching everyday life in a balanced way-feeling harmonious; approaching everyday life with ambiguity-feeling confused; approaching everyday life as an intellectual project-striving for control; approaching everyday life as a struggle-feeling forlorn. In addition, a comprehensive understanding was developed by using the lifeworld dimensions: lived body, lived room, lived time, and lived relations. These dimensions may deepen the understanding of important parts of those living conditions which are meaningful for the girls' health and well-being. By using the dimensions, complex living conditions have been explored and the meaning of different parts clarified. The girls' thoughts and feelings are often ambiguous and sometimes contradictory, depending on the situation. The health of adolescent girls needs to be understood against the background of their experiences of living conditions. One way to support their health and well-being seems to be to supply them with forums where they can talk about their living conditions.

  • 13.
    Lundin, Anette
    et al.
    Högskolan i Skövde, Institutionen för teknik och samhälle.
    Berg, Lars-Erik
    Högskolan i Skövde, Institutionen för teknik och samhälle.
    Muhli, Ulla Hellström
    Department of Sociology, Uppsala University, Uppsala, Sweden.
    Feeling existentially touched - A phenomenological notion of the well-being of elderly living in special housing accommodation from the perspective of care professionals2013Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 8, artikkel-id 20587Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This article presents a phenomenological analysis of interview material, in which 12 care professionals in elderly care reflect on the elderly's well-being within the frame of special housing accommodation. The perspective of the care professionals is of special interest. The findings show that the well-being is characterized as the elderly's feelings of being existentially touched. The well-being is an existential experience of being acknowledged as a human being and is an approach that classifies the elderly's needs as those of having, loving, and being. The meaning of the phenomenon is elucidated by the constituents: (1) to feel the freedom of choice, (2) to feel pleasure, and (3) to feel closeness to someone or something. The findings contribute new understanding of well-being in the elderly care by its existential dimension of the well-being as "just being'' and of doing things in order to experience meaningfulness. Accordingly, the well-being of the elderly as it is seen from the perspective of the care professionals involves both carers' subjectivity and intersubjectivity between the care professional and the elderly. An implication for promoting elderly's well-being is to develop awareness of these existential dimensions.

  • 14.
    Mårell, Lena
    et al.
    Department of Odontology, Faculty of Medicine, Umeå University, Umeå, Sweden.
    Lindgren, Monica
    Västerbotten County Council, Umeå, Sweden.
    Ternulf Nyhlin, Kerstin
    Högskolan i Skövde, Institutionen för hälsa och lärande.
    Ahlgren, Christina
    Department of Community Medicine and Rehabilitation, Physiotherapy, Umeå University, Umeå, Sweden.
    Berglund, Anders
    Department of Odontology, Faculty of Medicine, Umeå University, Umeå, Sweden.
    "Struggle to obtain redress'': Women's experiences of living with symptoms attributed to dental restorative materials and/or electromagnetic fields2016Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 11, artikkel-id 32820Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim of this study was to explore the experiences of illness and the encounters with health care professionals among women who attributed their symptoms and illness to either dental restorative materials and/or electromagnetic fields, despite the fact that research on health effects from dental fillings or electricity has failed to substantiate the reported symptoms. Thirteen women (aged 37-63 years) were invited to the study and a qualitative approach was chosen as the study design, and data were collected using semi-structured interviews. The analysis was conducted with a constant comparative method, according to Grounded Theory. The analysis of the results can be described with the core category, "Struggle to obtain redress,'' the two categories, "Stricken with illness'' and "A blot in the protocol,'' and five subcategories. The core category represents the women's fight for approval and arose in the conflict between their experience of developing a severe illness and the doctors' or dentists' rejection of the symptoms as a disease, which made the women feel like malingerers. The informants experienced better support and confirmation from alternative medicine practitioners. However, sick-leave certificates from alternative medicine practitioners were not approved and this led to a continuous cycle of visits in the health care system. To avoid conflicting encounters, it is important for caregivers to listen to the patient's explanatory models and experience of illness, even if a medical answer cannot be given.

    Fulltekst (pdf)
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  • 15.
    Nordblom, Ann-Katrin
    et al.
    Department of Cardiology, Skaraborgs Hospital Skövde, Sweden ; Faculty of Caring Sciences, Work Life and Social Welfare, University of Borås, Sweden.
    Kjellsdotter, Anna
    Högskolan i Skövde, Institutionen för hälsovetenskaper. Högskolan i Skövde, Forskningsmiljön hälsa, hållbarhet och digitalisering. Research and Development Centre, Skaraborg Hospital Skövde, Sweden.
    Norberg Boysen, Gabriella
    Faculty of Caring Sciences, Work Life and Social Welfare, University of Borås, Sweden ; Prehospen, Centre for Prehospital Research, University of Borås, Sweden.
    Berglund, Mia
    Högskolan i Skövde, Institutionen för hälsovetenskaper. Högskolan i Skövde, Forskningsmiljön hälsa, hållbarhet och digitalisering.
    Foreign movement in one's own body: Patients' experiences of being awake while treated with catheter ablation — a phenomenological study2023Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 18, nr 1, artikkel-id 2238972Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    PURPOSE: To address the consequences of living with supraventricular tachycardia and to improve the quality of treatment, there is a need to highlight patient experiences of treatment with catheter ablation. Therefore, the aim was to describe the phenomenon of catheter ablation, as it is experienced by patients being treated awake.

    METHODS: A descriptive design was applied based on a reflective lifeworld research founded on phenomenological epistemology. Interviews were conducted between December 2021 and Mars 2022 with seven women and five men, three to twelve months after they underwent catheter ablation.

    RESULTS: Patients undergoing catheter ablation while awake during treatment, which includes experiences of relying on others expertise, being actively passive, and striving to be cured. It entails experiences of having a foreign object moving in one's body and heart and can be endured through strategies of mainly shifted one's mental focus.

    CONCLUSIONS: The effort of undergoing a catheter ablation procedure is worthwhile as the confirmation of a physical curable condition that opens a future with possibilities instead of the obstacle in daily life that tachycardia entails. For the patients, an informative and caring conversation was needed that would have provided the support they lacked before and during the ablation.

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  • 16.
    Palmér, Lina
    et al.
    Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Sweden.
    Nyström, Maria
    Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Sweden.
    Carlsson, Gunilla
    Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Sweden.
    Gillsjö, Catharina
    Högskolan i Skövde, Institutionen för hälsovetenskaper. Högskolan i Skövde, Forskningsmiljön hälsa, hållbarhet och digitalisering. College of Nursing, University of Rhode Island, Kingston, RI, USA.
    Eriksson, Irene
    Högskolan i Skövde, Institutionen för hälsovetenskaper. Högskolan i Skövde, Forskningsmiljön hälsa, hållbarhet och digitalisering.
    Dalheim-Englund, Ann-Charlotte
    Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Sweden.
    The intertwining of reconciliation and displacement: a lifeworld hermeneutic study of older adults’ perceptions of the finality of life2020Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 15, nr 1, artikkel-id 1799588Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Purpose: This study aimed to explain and understand the existential meaning of the finality of life from the perspective of healthy older adults. Method: Participants were recruited from a major project on older adults’ life situations. They were interviewed about their thoughts on the end of life, and their responses were interpreted using a lifeworld hermeneutic approach. Results: The findings showed that thinking about the inevitable finality of life involves feelings of liberation, frightening thoughts, a comforting promise of something beyond death, acceptance of the concept of death as a companion in life and a desire to live. Philosopher Simone de Beauvoir’s existential ideas about ageing and death were then used to further explain and understand the meaning of the finality of life and to support a comprehensive understanding. de Beauvoir suggests that when the temporal horizon of existence shrinks, one lives closer to the finality of life. For a comprehensive understanding, attributing meaning to the finality of life required the intertwining of reconciliation and displacement. The interpretations were further discussed using ideas from the fields of existential philosophy and caring science in order to develop a basis for caring practice. Conclusions: The conclusions suggested that professional health care for older adults would benefit from a lifeworld-led caring science approach that includes readiness for a caring dialogue that focuses on existential issues. 

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  • 17.
    Peilot, Birgitta
    et al.
    Sahlgrenska Academy at the University of Gothenburg, Sahlgrenska University Hospital, Gothenburg, Sweden.
    Andréll, Paulin
    Sahlgrenska Academy at the University of Gothenburg, Sahlgrenska University Hospital, Gothenburg, Sweden.
    Samuelsson, Anita
    Health Centre, Landvetter, Sweden.
    Mannheimer, Clas
    Sahlgrenska Academy at the University of Gothenburg, Sahlgrenska University Hospital, Gothenburg, Sweden.
    Frodi, Ann
    University of Wisconsin, Iowa, Michigan, Rochester, NY, USA.
    Sundler, Annelie J.
    Högskolan i Skövde, Institutionen för hälsa och lärande. Högskolan i Skövde, Forskningsspecialiseringen Hälsa och Lärande. School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Time to gain trust and change: - experiences of attachment and mindfulness-based cognitive therapy among patients with chronic pain and psychiatric co-morbidity2014Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 9, artikkel-id 24420Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The treatment of patients with chronic pain disorders is complex. In the rehabilitation of these patients, coping with chronic pain is seen as important. The aim of this study was to explore the meaning of attachment and mindfulness-based cognitive therapy (CT) among patients with chronic pain and psychiatric co-morbidity. A phenomenological approach within a lifeworld perspective was used. In total, 10 patients were interviewed after completion of 7- to 13-month therapy. The findings reveal that the therapy and the process of interaction with the therapist were meaningful for the patients’ well-being and for a better management of pain. During the therapy, the patients were able to initiate a movement of change. Thus, CT with focus on attachment and mindfulness seems to be of value for these patients. The therapy used in this study was adjusted to the patients’ special needs, and a trained psychotherapist with a special knowledge of patients with chronic pain might be required.

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  • 18.
    Svanström, Rune
    et al.
    Högskolan i Skövde, Institutionen för vård och natur.
    Johansson Sundler, Annelie
    Högskolan i Skövde, Institutionen för vård och natur. School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Berglund, Mia
    Högskolan i Skövde, Institutionen för vård och natur.
    Westin, Lars
    Högskolan i Skövde, Institutionen för vård och natur.
    Suffering caused by care - elderly patients’ experiences in community care2013Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 8, nr 1, artikkel-id 20603Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: Growing old involves many changes in life and implies an increased risks of illness and different forms of disabilities. Life may change in a radical way when a person gets a disease like dementia or moves to a nursing home due to disabilities or needs. In both cases, it often leads to an increased dependency on care where the patient becomes exposed and vulnerable and thereby at a higher risk for experiencing different forms of suffering.

    Aim: The aim of this study was to elucidate and gain a deeper understanding of elderly patients’ experiences of suffering in relation to community care in nursing homes and home care services.

    Materials and methods: A lifeworld hermeneutical approach was used. Phenomenological interviews and conversations with an open approach were conducted and analysed with a focus on meanings.

    Findings: The findings were presented in four main themes; an absence of the other in care, an absence of dialogues, a sense of alienation and a sense of insecurity. The findings in this study revealed that persons who were cared for in nursing homes and home care services sometimes were exposed to an unnecessary suffering. The suffering sometimes was caused by various caring actions, that is, unnecessary suffering. The suffering caused by care that aroused was due to caregiver’s inability to be present, to show their face, and truly meet the patient.

    Conclusion: Suffering from care increased the elderly patients’ feelings of insecurity, loneliness, and alienation; this seemed to be the foundation for patients’ experiences of being outside a human community. There was a lack of knowledge and understanding about the patient’s lifeworld.

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    fulltext
  • 19.
    Svensson, Ann-Marie
    et al.
    School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Mårtensson, Lena
    Högskolan i Skövde, Institutionen för vård och natur. College of Nursing, University of Rhode Island, USA.
    Hellström Muhli, Ulla
    Department of Sociology, Uppsala University, Sweden.
    Well-being dialogue: Elderly women’s subjective sense of well-being from their course of life perspective2012Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 7, s. Article Number: 19207-Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    In this article, we are concerned with narratives of elderly women’s well-being from their perspectives of the latter parts of their life, living at special housing accommodation (SHA) in the context of Swedish elderly care. In focusing on narratives about well-being, we have a two-fold focus: (1) how the elderly women create their own identity and meaning-making based on lifetime experience; and (2) how narratives of well-being are reflected through the filter of life in situ at the SHA. Based on empirical data consisting of well-being narratives, a dialogical performance analysis was undertaken. The results show how relationships with important persons during various stages of life, and being together and enjoying fellowship with other people as well as enjoying freedom and self-determination, are central aspects of well-being. The conclusions drawn are that the characteristic phenomena of well-being (the what) in the narratives are continuity, identity, and sociality for the elderly person, and this is manifested (the how) as a question of contrasting the state of self-management and self-decline.

  • 20.
    Åberg, Cecilia
    et al.
    Högskolan i Skövde, Institutionen för hälsovetenskaper. Högskolan i Skövde, Forskningsmiljön hälsa, hållbarhet och digitalisering. School of Health and Welfare, Jönköping University, Sweden.
    Gillsjö, Catharina
    Högskolan i Skövde, Institutionen för hälsovetenskaper. Högskolan i Skövde, Forskningsmiljön hälsa, hållbarhet och digitalisering. College of Nursing, University of Rhode Island, Kingston, USA.
    Hallgren, Jenny
    Högskolan i Skövde, Institutionen för hälsovetenskaper. Högskolan i Skövde, Forskningsmiljön hälsa, hållbarhet och digitalisering. School of Health and Welfare, Jönköping University, Sweden.
    Berglund, Mia
    Högskolan i Skövde, Institutionen för hälsovetenskaper. Högskolan i Skövde, Forskningsmiljön hälsa, hållbarhet och digitalisering.
    "It is like living in a diminishing world": older persons' experiences of living with long-term health problems - prior to the STRENGTH intervention2020Inngår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 15, nr 1, s. 1-12, artikkel-id 1747251Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Introduction: Ageing is often associated with multiple long-term health problems influencing older persons' well-being in daily living. It is not unusual that the point of interest in research is often on the management of the actual health problem instead of being holistic and person-centred.Purpose: To describe the phenomenon of living with long-term health problems that influence daily living, from the older persons' perspective.Methods: Qualitative individual interviews were conducted with 34 older persons living with long-term health problems. The data were analysed using a Reflected Lifeworld Research (RLR) approach, grounded in phenomenology. Results: Life with long-term health problems entails living in a diminishing world. It entails living in uncertainty, not being able to trust one's own ability. The freedom to make decisions of your own is deprived by relatives and health-care providers. Living with long-term health problems entails being dependent on support in daily life and a strive to maintain meaningfulness in daily living.Conclusions: The results address a need for extended individual and holistic guidance and support in living with long-term health problems to increase the older person's sense of well-being and meaning in life.

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