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The meaning of well-being and participation in the process of health and care - women's experiences following a myocardial infarction
Växjö University, Sweden / Department of Cardiology, Skaraborg Hospital, Skövde, Sweden.
Växjö University, Sweden.
2006 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, Vol. 1, no 2, 100-108 p.Article in journal (Refereed) Published
Place, publisher, year, edition, pages
CoAction Publishing, 2006. Vol. 1, no 2, 100-108 p.
Research subject
Medical sciences
Identifiers
URN: urn:nbn:se:his:diva-7017OAI: oai:DiVA.org:his-7017DiVA: diva2:589272
Available from: 2013-01-17 Created: 2013-01-17 Last updated: 2013-01-28Bibliographically approved
In thesis
1. Mitt hjärta, mitt liv: Kvinnors osäkra resa mot hälsa efter en hjärtinfarkt
Open this publication in new window or tab >>Mitt hjärta, mitt liv: Kvinnors osäkra resa mot hälsa efter en hjärtinfarkt
2008 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The thesis describes the phenomenon women’s health and illness experiences following a myocardial infarction (MI). The purpose of the thesis is to explore women’s experiences of their care and health processes, as well as their experiences of body, lifeworld and meaningful relationships related to the illness. A reflective lifeworld approach, based on phenomenological philosophy, is used. The thesis is comprised of four studies; three are based on interviews with a total of 26 women following an MI, followed by a fourth, theoretical, study.

The first study explores women’s experiences of care and health processes following an MI, with a particular focus on well-being and participation (I). The findings show that an MI is an event that suddenly interrupts the ordinary life of the women. Participation is a sense of being involved in their own health and care processes, which may also encourage them to take responsibility for health promoting activities in a healthy and meaningful way.

The second study explores women’s lifeworld experience of their bodies and lives following an MI (II). This study finds that an MI, as a major event in the women’s lives, influences and restricts their everyday activities over a long period of time. Following the illness, they live with an existential uncertainty about their life and the heart, and this feeling entails suffering for them.

The third study explores the meaning of close relationships and sexuality to women’s health and well-being following an MI (III). The mmeaning of close relationships appears to be vitally intertwined with their long-term health process; both health processes and relationships are affected after an MI. The suffering following an MI can be compared to taking a fall, where meaningful close relationships can function as a safety net that catches the women in their fall.

The fourth study is a concept development aimed at elucidating the meaning of the concepts uncertainty, control, secure and risk in relation to the thesis phenomenon and the findings of the empirical interview studies (IV). The existential uncertainty is an important matter in the women’s health processes. In these processes the concepts control, secure and risk play a central role. Women who have suffered an MI want to be as safe as possible in order to live well. The analysis illuminates a paradox, that the women’s ambition to achieve greater safety may lead them into an even greater experience of uncertainty.

The conclusion is that women’s experiences of health and illness can be described as a journey characterized by existential uncertainty. The women’s lives go through different existential phases following an MI, which is a major event. They are not prepared for the reactions that this event causes and are in need of support and guidance to manage their illness experiences. If acknowledged and well met, the significance and meaning of the women’s reactions and experiences can give impetus and energy to their health processes.

Place, publisher, year, edition, pages
Växjö University Press, 2008. 82 p.
Series
Acta Wexionensia, ISSN 1404-4307 ; 158
Keyword
heart disease, phenomenology, reflective lifeworld research, patient perspective, health processes, caring science, patient participation, existential, uncertainty, nursing
National Category
Nursing
Research subject
Medical sciences
Identifiers
urn:nbn:se:his:diva-2709 (URN)978-91-7636-633-2 (ISBN)
Public defence
(English)
Opponent
Supervisors
Note

List of Papers: I. The meaning of well-being and participation in the process of health and care - Women's experiences following a myocardial infarction. Johansson, A. & Ekebergh, M. International Journal of Qualitative Studies on Health and Well-being, (2006), 1(2), 100-108 II. Living with experiences following a myocardial infarction. Johansson, A., Dahlberg, K. & Ekebergh, M. European Journal of Cardiovascular Nursing (2003), 2(3), 229-236 III. The meaning of close relationships and sexuality. Women's well-being following a myocardial infarction. Johansson. A, Ekenstam, C. & Dahlberg, K. Qualitative Health Research In press. IV. Hjärtats osäkerhet. Begreppsutredning på livsvärldsteoretisk grund. Submitted

Available from: 2010-04-09 Created: 2009-02-09 Last updated: 2013-11-04Bibliographically approved
2. När kroppen sviker: en livsvärldsstudie om kvinnors erfarenheter av hälsa, sjukdom och vård i samband med en hjärtinfarkt
Open this publication in new window or tab >>När kroppen sviker: en livsvärldsstudie om kvinnors erfarenheter av hälsa, sjukdom och vård i samband med en hjärtinfarkt
2005 (Swedish)Licentiate thesis, comprehensive summary (Other academic)
Abstract [en]

This thesis for a licentiate degree is a Caring Science lifeworld study the purpose of which is to describe women’s experiences of illness, health and care following a myocardial infarction. It consists of two studies (Papers I and II) which form the first part of a doctoral dissertation.

Cardio-vascular disorders are a major public health problem today. Besides the impact these disorders have on public finances, a disease such as myocardial infarction entails suffering for the afflicted person. Current research indicates that women measure their health as lower than men following a myocardial infarction. There is still a lack of knowledge on how to understand women’s health process following a myocardial infarction, and how to provide them with the support needed to promote good health and well-being. Paper I explores women’s experiences of their lifeworld and body following a myocardial infarction. Paper II explores women’s experiences of the care and health process following a myocardial infarction, with a particular focus on their experience of participation. The method of reflective lifeworld research, based on phenomenological epistemology, is used to explore the meaning that is experienced in the lived world of the patient.

This research finds that women describe that their lives come to a stand-still following a myocardial infarction. They perceive their bodies as having failed them, which entails existential uncertainty, meaning that the women no longer feel secure about their bodies or life, itself. Their suffering is difficult to understand, both for themselves and for those around them, and the women suffer in silence. Health-care professionals have the potential to promote health by supporting the women towards greater participation and independence in the health process. Participation, however, is not limited to concrete participation in care, but in offering health care based on women’s perspective of how their life situations changed following the illness. This will provide the women with the support they need to discover their own health promoting resources, and to become friends with their bodies and the life that follows a myocardial infarction.

Place, publisher, year, edition, pages
Växjö: Institutionen för vårdvetenskap och socialt arbete, 2005. 79 p.
Series
Rapportserie i vårdvetenskap : Växjö universitet, Institutionen för vårdvetenskap och socialt arbete, ISSN 1653-5294 ; 2005:1
Keyword
vårdvetenskap, livsvärldsforskning, hjärtinfarkt, kvinnor, patientperspektivet, existentiell osäkerhet
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:his:diva-7024 (URN)
Presentation
2005-08-23, K1211, K,, Växjö universitet, Växjö, 10:30 (English)
Opponent
Supervisors
Available from: 2013-01-25 Created: 2013-01-21 Last updated: 2013-01-28Bibliographically approved

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