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Clarifying responsibility for self-management of diabetes in adolescents using insulin pumps - a qualitative study
Sachs' Children's Hospital, Södersjukhuset, Stockholm, Sweden / Department of Medical Sciences, Uppsala University, Sweden.
University of Skövde, School of Life Sciences.
Senior Lecturer Department of Medical Sciences, Uppsala University, Sweden.
2011 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 67, no 7, 1547-1557 p.Article in journal (Refereed) Published
Abstract [en]

Aim. To gain insight into and generate theoretical knowledge about the processes involved when insulin pump-treated adolescents take or miss taking their bolus doses.

Background. Insulin pump treatment is considered the most physiological way to imitate the healthy body’s insulin profile in adolescents with diabetes. Despite insulin pump treatment, it is hard to maintain near-normal glucose control in adolescents; one reason for this is missed bolus doses with meals.

Method. In this qualitative interview study, the grounded theory method was chosen as a model for the collection and analysis of data. Twelve adolescents (five boys and seven girls, mean age: 14.4 years, range: 12–19 years) from different Swedish paediatric diabetes clinics, four parents and one paediatric diabetes nurse were interviewed during 2008 and 2009. Two adolescents and two parents were re-interviewed after approximately 10 months. Data from clinical visits and diabetes camps were used to verify emerging categories.

Findings. Responsibility in the context of taking or missing bolus doses emerged as the core category. It is elaborated and explained through three subcategories: distribution of responsibility, transfer of responsibility and clarification of responsibility. The findings describe the need to clarify the responsibility for diabetes self-management in continuous negotiations between adolescents and parents to avoid missed doses.

Conclusion. Negotiations to clarify the responsibility for diabetes self-management must be a continuous process between adolescents and parents. Diabetes care teams can facilitate and encourage these negotiations.

Place, publisher, year, edition, pages
Blackwell Publishing, 2011. Vol. 67, no 7, 1547-1557 p.
Keyword [en]
adolescent parenting, adolescents, diabetes mellitus type 1, grounded theory, insuline pump, interviews, nursing
National Category
Medical and Health Sciences
Research subject
Medical sciences
Identifiers
URN: urn:nbn:se:his:diva-5388DOI: 10.1111/j.1365-2648.2010.05588.xISI: 000292779400013PubMedID: 21323979Scopus ID: 2-s2.0-79958747188OAI: oai:DiVA.org:his-5388DiVA: diva2:477435
Available from: 2012-01-13 Created: 2012-01-13 Last updated: 2012-12-14Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
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