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Patienters upplevelser av sjukdomen amyotrofisk lateralskleros: En studie av självbiografier
University of Skövde, School of Life Sciences.
University of Skövde, School of Life Sciences.
2010 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Patients Experiences of the Disease Amyotrophic Lateral Sclerosis : A study of autobiographies (English)
Abstract [sv]

Ungefär 200 personer insjuknar årligen i sjukdomen amyotrofisk lateralskleros (ALS), vilket ses som en ökning de senaste 30 åren. Att insjukna i en obotlig sjukdom bidrar till både fysiskt och psykiskt lidande. Det är viktigt att förstå patienters upplevelser av sjukdomen vilket det saknas information om. Syftet var att utifrån självbiografier, beskriva patienters upplevelser av att leva med ALS. En kvalitativ innehållsanalys beskriven av Lundman och Hällgren Graneheim gjordes. Datamaterialet bestod av sju självbiografier. Ur datamaterialet urskiljdes patienters känslor och upplevelser kring sjukdomen ALS i form av sex kategorier med tillhörande underkategorier. Kategorierna som framkom var; svårigheter kring den begynnande sjukdomen, tankar kring döden, sorg, bristande självkänsla, att känna sig utlämnad och att få insikt i sin sjukdom. Informanternas beskrev upplevelserna olika eftersom det fanns variationer av varje individs sjukdom. Att slutligen kunna se positiva stunder trots sin sjukdom var betydande. Ingen vet bättre än patienten själv hur den mest uppskattade omvårdnaden kan ges. Därför är det av vikt att lyssna på patienters upplevelser och deras egen berättelse av den upplevda sjukdomen. Erfarenheterna av sjukdomen var av olika karaktär men likheter kunde ses där många upplevelser var återkommande hos de flesta informanterna.

Abstract [en]

About 200 persons become ill annually with the illness amyotrophic lateral sclerosis (ALS), which can be seen as an increase in the last 30 years. Falling ill in an incurable illness contributes to both physical and psychological suffering. It is important to understand the patient’s experiences of the illness and this is a field where there is little or no information available. The aim of this study was to describe the patients’ experiences of living with ALS from autobiographies. A qualitative content analysis described by Lundman and Hällgren Graneheim was performed. The data material consisted of seven autobiographies. From the data material patient’s feelings and experiences of the illness ALS was discerned in terms of six categories with associated subcategories. The categories were; difficulties of the emerging illness, thoughts about death, sadness, lack of self esteem, to feel deserted and to reach insight into their own illness. The informants described experiences differently due to individual variations of illness. To eventually be able to see positive moments despite the illness was significant. No one knows better than the patient how the most appreciated nursing care should be. Therefore it is of importance to listen to patients’ own experience of the illness. The experiences of the illness varied but similarities could be seen where many experiences were recurrent among most informants.

Place, publisher, year, edition, pages
2010. , 23 p.
Keyword [en]
Amyotrophic lateral sclerosis, Experiences, Patients perspective
Keyword [sv]
Amyotrofisk lateralskleros, Upplevelser, Patientperspektiv
Identifiers
URN: urn:nbn:se:his:diva-4101OAI: oai:DiVA.org:his-4101DiVA: diva2:323918
Presentation
2010-06-03, Sal A 204, Högskolan i Skövde, Skövde, 13:15 (Swedish)
Uppsok
Medicine
Supervisors
Examiners
Available from: 2010-09-16 Created: 2010-06-13 Last updated: 2010-09-16Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
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More styles
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Output format
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