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Benefits from membership in cancer patient associations: Relations to gender and involvement
Department of Oncology, Institute of Clinical Sciences, Lund University, SE-221 85 Lund, Sweden / Department of Oncology, Institute of Clinical Sciences, Lund University Hospital, SE - 221 85 Lund, Sweden.
Department of Oncology, Institute of Clinical Sciences, Lund University, SE-221 85 Lund, Sweden.
University of Skövde, School of Life Sciences.
Department of Oncology, Institute of Clinical Sciences, Lund University, SE-221 85 Lund, Sweden.
2006 (English)In: Acta Oncologica, ISSN 0284-186X, E-ISSN 1651-226X, Vol. 45, no 5, 559-563 p.Article in journal (Refereed) Published
Abstract [en]

Cancer patient associations report a growing number of members and increasing possibilities to influence health care, but knowledge about the members' views on the benefit of involvement is scarce. We therefore investigated how members (n = 1742) of Swedish patient associations for breast cancer and prostate cancer rate the benefit of membership for their physical and psychological well-being and social adjustment to cancer. Using a scoring scale, 2/3 of the members reported that membership had benefit for psychological well-being, whereas half of the members reported benefit for physical well-being and social adjustment. Individuals who had been actively involved in board work and/or contact person activities within the associations reported significantly more benefit for all three parameters. Gender differences were observed with men, represented by individuals affected by prostate cancer, reporting greater benefit for all three parameters, although especially evident for psychological well-being. Individuals who obtained membership within two years of diagnosis reported greater benefit for psychological well-being and social adjustment compared to those who became members later. In conclusion, members in patient associations for cancer report benefit particularly for their psychological well-being and actively involved members and men affected by prostate cancer perceive the greatest benefit from membership.

Place, publisher, year, edition, pages
Informa Healthcare, 2006. Vol. 45, no 5, 559-563 p.
National Category
Medical and Health Sciences
Research subject
Medical sciences
Identifiers
URN: urn:nbn:se:his:diva-1814DOI: 10.1080/02841860600724419ISI: 000239275900007PubMedID: 16864169Scopus ID: 2-s2.0-33746698901OAI: oai:DiVA.org:his-1814DiVA: diva2:32090
Available from: 2007-09-03 Created: 2007-09-03 Last updated: 2013-04-10Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
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