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Patients' involvement in improving cancer care: experiences in three years of collaboration between members of patient associations and health care professionals
Department of Oncology, Institute of Clinical Sciences, Lund University Hospital, SE-221 85 Lund, Sweden / Department of Research and Development, County Hospital, SE-301 85 Halmstad, Sweden.
Department of Oncology, Institute of Clinical Sciences, Lund University Hospital, SE-221 85 Lund, Sweden.
University of Skövde, School of Life Sciences.
2006 (English)In: Patient Education and Counseling, ISSN 0738-3991, E-ISSN 1873-5134, Vol. 61, no 1, 65-71 p.Article in journal (Refereed) Published
Abstract [en]

Objective

The aim of this study was to explore how members of patient associations (PACPs) and health care professionals (HCPs) experience collaboration in a network initiated by the health care system and aimed at improving cancer care.

Methods

The participants were asked to describe, after 1 and 3 years, their experiences of collaboration. Data collected were in the form of a written answer to a single, open-ended question, and the answers were analysed using inductive content analysis.

Results

The analysis revealed four themes: the impact of processes that occur within the network, the impact of learning, the impact of innovation and development in cancer care, and the impact of PACP members’ personal cancer experience. Statements about the impact of the processes that occur within the network dominated at both occasions.

Conclusion

This study of experiences of collaboration provides new data on the importance ascribed to such efforts between patients in an organised association and HCPs.

Practice implications

We suggest that differences in perceptions and expectations should be taken into account in future collaborations between representatives of patient associations and of health care systems in order to reach out and to influence developments in cancer care.

Place, publisher, year, edition, pages
Elsevier, 2006. Vol. 61, no 1, 65-71 p.
National Category
Medical and Health Sciences
Research subject
Medical sciences
Identifiers
URN: urn:nbn:se:his:diva-1613DOI: 10.1016/j.pec.2005.02.008ISI: 000236630800010PubMedID: 16533678Scopus ID: 2-s2.0-33644922059OAI: oai:DiVA.org:his-1613DiVA: diva2:31889
Available from: 2007-08-01 Created: 2007-08-01 Last updated: 2013-04-10Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf