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Supporter or obstructer: experiences from contact person activities among Swedish women with breast cancer
Department of Oncology, Institute of Clinical Sciences Lund, Lund University, SE - 221 85 Lund, Sweden / Dept. of Research and Development, County Hospital, SE - 301 85 Halmstad, Sweden.
Department of Oncology, Institute of Clinical Sciences Lund, Lund University, SE - 221 85 Lund, Sweden.
University of Skövde, School of Life Sciences.
2005 (English)In: BMC Health Services Research, ISSN 1472-6963, Vol. 5, 9- p.Article in journal (Refereed) Published
Abstract [en]

Background: Swedish patient associations for breast cancer patients (PABCPs) offer patients with breast cancer unlimited meetings with a breast cancer survivor, a contact person (CP). We applied the voluntary action perspective in this interview study with members of Swedish PABCPs in order to explore how women with breast cancer experienced their contact with a CP from a PABCP.

Methods: Audio-taped narratives from 8 women were analysed using Reissman's monitoring and Gee's analysis structure.

Results: Three themes appeared: 1. Shared experiences give new perspectives on having cancer, 2. Feelings of isolation are a part of the identity of the illness and 3. Relations with others enable self-help. However, the relationship with the CP is sensitive to timing, correct information and understanding.

Conclusions: CPs act as sounding boards and should optimally have capacity for listening, gives support and act as partner in this conversation. On the other hand, CPs should be aware that their presence and limited general medical knowledge could at times disturb the patient's psychological recovery and strengthen feelings of isolation. Thus, PABCPs must be careful in selecting CPs and offer relevant educational activities related to the themes identified herein.

Place, publisher, year, edition, pages
BioMed Central, 2005. Vol. 5, 9- p.
National Category
Medical and Health Sciences
Research subject
Medical sciences
Identifiers
URN: urn:nbn:se:his:diva-1570DOI: 10.1186/1472-6963-5-9ISI: 000226868500001PubMedID: 15670335Scopus ID: 2-s2.0-14544288677OAI: oai:DiVA.org:his-1570DiVA: diva2:31846
Available from: 2007-07-20 Created: 2007-07-20 Last updated: 2013-09-20Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf