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Do you want to receive bad news through your patient accessible electronic health record?: A national survey on receiving bad news in an era of digital health
University of Skövde, School of Informatics. University of Skövde, Informatics Research Environment. (Informationssystem, Information Systems)ORCID iD: 0000-0001-8957-9853
Örebro University School of Business, Sweden.
Uppsala University, Sweden ; Åbo Akademi University, Finland.
University of Skövde, School of Informatics. University of Skövde, Informatics Research Environment. (Informationssystem, Information Systems)ORCID iD: 0000-0002-8607-948X
2021 (English)In: Health Informatics Journal, ISSN 1460-4582, E-ISSN 1741-2811, Vol. 27, no 3, article id 14604582211035817Article in journal (Refereed) Published
Abstract [en]

Despite the fact that patient accessible electronic health records (PAEHRs) have been around for many years in several countries, there is a lack of research investigating patient’s preferences for receiving bad news, including through PAEHRs. Little is also known about the characteristics of the patients who prefer to receive bad news through the PAEHR in terms of, for example medical diagnosis, age and educational level. This study, based on a national patient survey in Sweden (N = 2587), investigated this. Results show that, generally, receiving bad news by reading in the PAEHR is still among the least preferred options. Additionally, a higher proportion of men want to receive bad news in the PAEHR compared to women (p = 0.001), and the same goes for those who are not working/have worked in healthcare (p = 0.007). An effect of disease groups was also found, showing that diabetes patients in particular, want to receive bad news through the PAEHR. 

Place, publisher, year, edition, pages
Sage Publications, 2021. Vol. 27, no 3, article id 14604582211035817
Keywords [en]
abnormal test results, bad news, patient, patient accessible electronic health record, physician
National Category
Health Care Service and Management, Health Policy and Services and Health Economy Information Systems
Research subject
Information Systems
Identifiers
URN: urn:nbn:se:his:diva-20538DOI: 10.1177/14604582211035817ISI: 000697949600001PubMedID: 34461772Scopus ID: 2-s2.0-85114027737OAI: oai:DiVA.org:his-20538DiVA, id: diva2:1592469
Note

CC BY 4.0

© The Author(s) 2021

Corresponding author: Jonas Moll, Centre for Empirical Research on Information Systems, Örebro University School of Business, Fakultetsgatan 1, 701 82 Örebro, Sweden. 

Available from: 2021-09-09 Created: 2021-09-09 Last updated: 2021-10-29Bibliographically approved

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Rexhepi, HanifeÅhlfeldt, Rose-Mharie

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