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Are patients willing to take a more active role?: Questionnaires to measure patients’ willingness to be empowered
University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR). University West, School of Business, Economics and IT, Trollhättan, Sweden. (Medborgarcentrerad hälsa MeCH, Research on Citizen Centered Health, University of Skövde (Reacch US))ORCID iD: 0000-0002-0575-4309
The Department of Measurement Sciences and Technology, Research Institutes of Sweden (RISE), Gothenburg, Sweden ; Gothenburg Centre for Person-Centred Care (GPCC), University of Gothenburg, Sweden.
University West, School of Business, Economics and IT, Trollhättan, Sweden.
Department of Surgery, SSORG - Scandinavian Surgical Outcomes Research Group, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden f Region Västra Götaland, Sahlgrenska University Hospital/Östra, Department of Surgery, Gothenburg, Sweden.
2022 (English)In: Patient Education and Counseling, ISSN 0738-3991, E-ISSN 1873-5134, Vol. 105, no 3, p. 741-749Article in journal (Refereed) Published
Abstract [en]

Objective

One crucial prerequisite for increased patient empowerment is the willingness among patients to take a more active role. The aim of this study was to develop questionnaires for measuring a patient’s willingness to be empowered in general and by using e-health.

Methods

The study was based on a random sample from an online panel. The 800 responders were Swedish citizens and reflected the internet-using population in Sweden regarding age, gender, income, and education. The measurement properties were evaluated according to the Rasch Measurement Theory.

Results

The analyses showed two questionnaires with adequate fit to the basic measurement model and with high reliability (PSI 0.84 and 0.89, respectively).

Conclusion

We conclude that this study generated two questionnaires with an intuitive order of items illustrating an understandable progression of willingness to be empowered in general as well as for e-health.

Practice implications

The suggested questionnaires are valuable tools supporting the effort to tailor empowerment strategies to meet the patient’s willingness. Questionnaires will also be valuable for evaluating strategies for supporting willingness, studying factors related to willingness and potential inequalities due to e.g. varying digital literacy, and for enabling identification of patient stereotypes using cluster analyses.

Place, publisher, year, edition, pages
Elsevier, 2022. Vol. 105, no 3, p. 741-749
Keywords [en]
Willingness, Patient empowerment, Questionnaire, Rasch analysis
National Category
Nursing Information Systems, Social aspects
Research subject
Research on Citizen Centered Health, University of Skövde (Reacch US)
Identifiers
URN: urn:nbn:se:his:diva-20374DOI: 10.1016/j.pec.2021.07.006ISI: 000820505900027PubMedID: 34312033Scopus ID: 2-s2.0-85111520789OAI: oai:DiVA.org:his-20374DiVA, id: diva2:1583749
Note

CC BY-NC-ND 4.0

Available online 7 July 2021

We are deeply grateful to the research environment “Learning in and for the new working life,” University West, Sweden and the research institute RISE Knowledge Platform “Centre for Categorically Based Measures” for sponsoring the costs for using the online panel and services offered by Kantar-Sifo. The study was financed by grants from the Swedish government under the agreement between the Swedish government and the county councils, the ALF agreement ALFGBG-716581.

Available from: 2021-08-09 Created: 2021-08-09 Last updated: 2022-08-09Bibliographically approved

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Gellerstedt, Martin

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