E-Consent for Data Privacy: Consent Management for Mobile Health Technologies in Public Health Surveys and Disease SurveillanceShow others and affiliations
2019 (English)In: MEDINFO 2019: Health and Wellbeing e-Networks for All / [ed] Lucila Ohno-Machado, Brigitte Séroussi, IOS Press, 2019, Vol. 264, p. 1223-1227Conference paper, Published paper (Refereed)
Abstract [en]
Community health workers in primary care programs increasingly use Mobile Health Data Collection Systems (MDCSs) to report their activities and conduct health surveys, replacing paper-based approaches. The mHealth systems are inherently privacy invasive, thus informing individuals and obtaining their consent is important to protect their rights to privacy. In this paper, we introduce an e-Consent tool tailored for MDCSs. It is developed based on the requirement analysis of consent management for data privacy and built upon the solutions of Participant-Centered Consent toolkit and Consent Receipt specification. The e-Consent solution has been evaluated in a usability study. The study results show that the design is useful for informing individuals on the nature of data processing, allowing them to make informed decisions.
Place, publisher, year, edition, pages
IOS Press, 2019. Vol. 264, p. 1223-1227
Series
Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365 ; 264
Keywords [en]
Mobile health, Privacy, Public surveillance
National Category
Computer Sciences
Research subject
Information Systems
Identifiers
URN: urn:nbn:se:his:diva-19200DOI: 10.3233/SHTI190421ISI: 000569653400246PubMedID: 31438120Scopus ID: 2-s2.0-85071502761ISBN: 978-1-64368-002-6 (print)ISBN: 978-1-64368-003-3 (electronic)OAI: oai:DiVA.org:his-19200DiVA, id: diva2:1478373
Conference
17th World Congress of Medical and Health Informatics (MEDINFO), Lyon, France, 25 to 30 August 2019
Note
CC BY-NC 4.0
2020-10-222020-10-222021-01-28