Högskolan i Skövde

his.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • apa-cv
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
"It is like living in a diminishing world": older persons' experiences of living with long-term health problems - prior to the STRENGTH intervention
University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR). School of Health and Welfare, Jönköping University, Sweden. (Välbefinnande vid långvariga hälsoproblem (WeLHP))ORCID iD: 0000-0001-8554-352X
University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR). College of Nursing, University of Rhode Island, Kingston, USA. (Välbefinnande vid långvariga hälsoproblem (WeLHP))ORCID iD: 0000-0003-3970-1288
University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR). School of Health and Welfare, Jönköping University, Sweden. (Välbefinnande vid långvariga hälsoproblem (WeLHP))ORCID iD: 0000-0003-1819-0896
University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR). (Välbefinnande vid långvariga hälsoproblem (WeLHP))ORCID iD: 0000-0002-2671-1041
2020 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 15, no 1, p. 1-12, article id 1747251Article in journal (Refereed) Published
Abstract [en]

Introduction: Ageing is often associated with multiple long-term health problems influencing older persons' well-being in daily living. It is not unusual that the point of interest in research is often on the management of the actual health problem instead of being holistic and person-centred.Purpose: To describe the phenomenon of living with long-term health problems that influence daily living, from the older persons' perspective.Methods: Qualitative individual interviews were conducted with 34 older persons living with long-term health problems. The data were analysed using a Reflected Lifeworld Research (RLR) approach, grounded in phenomenology. Results: Life with long-term health problems entails living in a diminishing world. It entails living in uncertainty, not being able to trust one's own ability. The freedom to make decisions of your own is deprived by relatives and health-care providers. Living with long-term health problems entails being dependent on support in daily life and a strive to maintain meaningfulness in daily living.Conclusions: The results address a need for extended individual and holistic guidance and support in living with long-term health problems to increase the older person's sense of well-being and meaning in life.

Place, publisher, year, edition, pages
Taylor & Francis, 2020. Vol. 15, no 1, p. 1-12, article id 1747251
Keywords [en]
Ageing, health problem, illness, multimorbidity, patient perspective, phenomenology, qualitative research, reflective lifeworld research, strength, well-being
National Category
Nursing
Research subject
Wellbeing in long-term health problems (WeLHP)
Identifiers
URN: urn:nbn:se:his:diva-18421DOI: 10.1080/17482631.2020.1747251ISI: 000526446300001PubMedID: 32275201Scopus ID: 2-s2.0-85083506007OAI: oai:DiVA.org:his-18421DiVA, id: diva2:1427679
Note

CC BY 4.0

Contact: Cecilia Åberg cecilia.aberg@his.se School of Health Sciences, University of Skövde, P.O. Box 408, Skövde SE-541 28, Sweden

The study was funded by the School of Health Sciences, University of Skövde, Sweden and by the Skaraborg Institute for Research and Development, Sweden.

Available from: 2020-04-30 Created: 2020-04-30 Last updated: 2022-04-08Bibliographically approved
In thesis
1. Striving for meaning in a diminishing world: Older persons’ experiences of reflective STRENGTH-giving dialogues including a digital tool
Open this publication in new window or tab >>Striving for meaning in a diminishing world: Older persons’ experiences of reflective STRENGTH-giving dialogues including a digital tool
2022 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The Reflective STRENGTH-Giving Dialogue (STRENGTH) method was developed, grounded in a lifeworld perspective, with a focus on identifying and meeting older persons’ needs for the promotion of health and well-being. In this thesis, STRENGTH, including the digital tool SelfSTRENGTH, was tested in the context of community-dwelling older persons living with long-term health problems.

The overall aim was to describe how life with long-term health problems is experienced and influenced by the Reflective STRENGTH-Giving Dialogue intervention, including the SelfSTRENGTH app, by community-dwelling older persons.

The research was conducted based on a reflective lifeworld approach, through qualitative and quantitative method studies. Three of the studies had a qualitative, descriptive, and inductive design based on individual interviews and reflection notes with the older persons in the intervention group (Papers I–III). Analysis was conducted using phenomenology (Papers I–II), and phenomenography (Paper III). One study had a quasi-experimental pretest-posttest no-treatment control group design (Paper IV), and was analyzed using nonparametric paired statistics. Altogether, 60 older persons in the fourth age participated in the studies.

The finding showed, according to self-reports, that STRENGTH immediately and significantly reduced the impact of health problems on daily life, and increased well-being after each single dialogue. The content and outcome of the dialogues are affected by intersubjectivity, which is influenced by the healthcare professional (HCP) and the older person’s ability, as well as the relationship between them. STRENGTH dialogues that have an existential dimension are described as a starting point to provide a “push” toward joy and meaning. When the understanding of an older person’s holistic situation, including the past, present, and future, is tactfully and sensitively challenged with reflection and an emphasis on possibilities, the dialogues support joy and meaning in life. Dialogues of this nature have been lacking, as older persons may choose not to have that conversation with their family or HCPs, and HCPs may not attend to the older person’s existential needs and concerns. It is important when living in the feeling of a diminishing world for older persons to be involved in decisions that concern their lives and care, and to engage in life projects that improve well-being. This is made possible through the dialogues and use of the SelfSTRENGTH app. However, use of the app is hindered by resistance to digital technology and the occurrence of health problems.

To foster healthy ageing, HCPs need increased knowledge and favorable conditions for caring conversations and provision of digital support that older persons with long-term health problems need for participation in a digital society.

Place, publisher, year, edition, pages
Jönköping: Jönköping University, School of Health and Welfare, 2022. p. 111
Series
Dissertation Series / Jönköping University, School of Health and Welfare, ISSN 1654-3602 ; 110
Keywords
Caring conversation, complex intervention, patient perspective, phenomenology, phenomenography, quasi-experimental design, reflected lifeworld research
National Category
Gerontology, specialising in Medical and Health Sciences Health Care Service and Management, Health Policy and Services and Health Economy
Research subject
Wellbeing in long-term health problems (WeLHP)
Identifiers
urn:nbn:se:his:diva-21045 (URN)978-91-88669-09-4 (ISBN)
Public defence
2022-04-29, Insikten, Portalen, Kanikegränd 3B, Skövde, 13:00 (English)
Opponent
Supervisors
Available from: 2022-04-08 Created: 2022-04-08 Last updated: 2023-01-10Bibliographically approved

Open Access in DiVA

fulltext(1552 kB)221 downloads
File information
File name FULLTEXT01.pdfFile size 1552 kBChecksum SHA-512
59a85d1e2d4eaef5f821b49d119a92a6d5eb86a0138fcc6c341093cb5f7692b019f93f13371d5201220a630fb25d103d45a627fdf85911edae4caccc2d182242
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMedScopus

Authority records

Åberg, CeciliaGillsjö, CatharinaHallgren, JennyBerglund, Mia

Search in DiVA

By author/editor
Åberg, CeciliaGillsjö, CatharinaHallgren, JennyBerglund, Mia
By organisation
School of Health SciencesDigital Health Research (DHEAR)
In the same journal
International Journal of Qualitative Studies on Health and Well-being
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 222 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 356 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • apa-cv
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf