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Upplevelsen av transition hos patienter med amyotrofisk lateralskleros: En kvalitativ studie av självbiografier
University of Skövde, School of Health and Education.
University of Skövde, School of Health and Education.
2019 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
The experience of transition among patients with Amoytrophic Lateral Sclerosis : A qualitative study of autobiographies (English)
Abstract [sv]

Bakgrund: Amyotrofisk lateralskleros [ALS] är en progressiv motorneuronsjukdom där kroppens nervceller förtvinar och dör, vilket tillslut leder till en förlamning av alla viljestyrda muskler. Cirka 220-250 personer i Sverige insjuknar årligen och drabbar främst personer i åldern 45-75 år. Det finns ännu inget botemedel och levnadstiden efter diagnos är vanligtvis mellan 20-48 månader. Syfte: Syftet är att undersöka patienters upplevelse av transition vid sjukdomen amyotrofisk lateralskleros. Metod: En kvalitativ studie, med deduktiv ansats, inriktad på att studera självbiografier skrivna av personer med ALS. Resultat: Upplevelser av transition visade sig tydligt under sjukdomsprocessen. Tidigt kom insikten om att de skulle dö, vilket skapade mycket känslor samt funderingar över att saker och ting skulle upplevas för sista gången. Flera kämpade med att acceptera varför just dem drabbats, att behöva ta emot hjälp och hade tankar kring döden. Förluster var svåra att hantera, men genom ett positivt förhållningssätt blev situationen mer hanterbar. Konklusion: Varje person i studien hade likvärdiga upplevelser, men hanterade förändringar på olika sätt. För att uppfylla en god vård är det viktigt att som sjuksköterska arbeta personcentrerat och beakta att alla individer är olika och har olika behov av stöd.

Abstract [en]

Background: Amyotrophic lateral sclerosis [ALS] is a progressive motor neuron disease which neurons atrophies and dies, eventually leading to a paralysis of all voluntary muscles. In sweden 220-250 people get the diagnosis each year and it mainly affect people between ages 45-75. There's not yet been invented a cure and the survival time after diagnosis is usually between 20-48 months. Aim: The aim is to study patients’, with the disease ALS, experiences of transition. Method: A qualitative study, with a deductive approach, focused on studying autobiographies written by people with ALS. Results: Experiences of transition were evident during the process of the disease. Early the insight came that they will die, which created a lot of emotions and reflections about that things would be experienced for the last time. Several struggled with thoughts about death, accepting why they got the diagnosis and having to receive help. With a positive approach, the situation and losses became more manageable. Conclusion: Each person in the study had similar experiences, but managed changes in different ways. In order to perform a good care, it’s important as a nurse to work person-centered and consider that all individuals are different and have different needs of support.

Place, publisher, year, edition, pages
2019. , p. 24
Keywords [en]
ALS, experience, nurse, nursing, transition
Keywords [sv]
ALS, omvårdnad, sjuksköterska, transition, upplevelser
National Category
Nursing
Identifiers
URN: urn:nbn:se:his:diva-16795OAI: oai:DiVA.org:his-16795DiVA, id: diva2:1306005
Subject / course
Nursing/Nursing Science
Educational program
Nursing - Study Programme
Supervisors
Examiners
Available from: 2019-04-23 Created: 2019-04-22 Last updated: 2019-04-23Bibliographically approved

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