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Living in the Presence of Death: An Integrative Literature Review of Relatives' Important Existential Concerns when Caring for a Severely Ill Family Member
Mid Sweden University, Department of Health Sciences, Östersund, Sweden.
Bräcke Diakoni Foundation, Research Unit, Gothenburg, Sweden / Karolinska Institutet, Institution of Learning, Informatics, Management and Ethics, Medical Management Centre, Stockholm, Sweden / The Sahlgrenska Academy, University of Gothenburg, Institute of Health and Care Sciences, Sweden.
Angered Local Hospital, Gothenburg, Sweden / The Sahlgrenska Academy, University of Gothenburg, Institute of Health and Care Sciences, Sweden.
Högskolan i Skövde, Institutionen för vård och natur. Sahlgrenska University Hospital, Department of Oncology, Clinical Trial Unit. Gothenburg, Sweden / The Sahlgrenska Academy, University of Gothenburg, Institute of Health and Care Sciences, Sweden.ORCID-id: 0000-0003-0976-531X
2012 (Engelska)Ingår i: Open Nursing Journal, ISSN 1874-4346, E-ISSN 1874-4346, Vol. 6, s. 1-12Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Aim: The aim of this study was to explore relatives’ existential concerns when caring for a seriously ill family member as well as to describe interventions that meet these concerns.

Methods: In this integrative literature review we assessed and classified 17 papers, 12 qualitative and 5 quantitative. Literature was sought in the databases Cinahl, PubMed, Psykinfo and Web of Science in September 2009 and in March 2010. Search terms used in different combinations were: family, family caregiver, next of kin, relatives, palliative, palliative care, end-of-life care, existential, spirit*. Data were redrawn from the papers results/findings, and synthesized into a new descriptive content.

Results: The results were categorized from 13 papers exploring relatives’ important existential concerns and 4 papers describing interventions aimed to support them in the existential area. A majority of the reviewed papers had been written in Sweden and concerned relatives of patients with cancer. One overarching theme, living in the presence of death, and three categories: responses to life close to death; support when death is near; and beyond the presence of death were created.

Conclusion: There is an urgent demand for large-scale studies using accurate methodology, as well as a need to design qualified investigations regarding the effects of various interventions, and to determine which interventions are the most effective in supporting relatives who experience existential distress manifested physically and/or psychologically. There is also a considerable demand for educational interventions among professionals in various healthcare settings to increase their knowledge regarding existential concerns among relatives.

Ort, förlag, år, upplaga, sidor
Bentham Open , 2012. Vol. 6, s. 1-12
Nyckelord [en]
Cancer, end-of-life care, family, incurable illness, nursing, review
Nationell ämneskategori
Medicin och hälsovetenskap
Forskningsämne
Medicin
Identifikatorer
URN: urn:nbn:se:his:diva-5874DOI: 10.2174/1874434601206010001PubMedID: 22371820OAI: oai:DiVA.org:his-5874DiVA, id: diva2:526580
Tillgänglig från: 2012-05-14 Skapad: 2012-05-14 Senast uppdaterad: 2017-12-07Bibliografiskt granskad

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