A feeling of not being alone – Patients' with COPD experiences of a group‐based self‐management education with a digital website: A qualitative study
2024 (English) In: Nursing Open, E-ISSN 2054-1058, Vol. 11, no 4, article id e2153Article in journal (Refereed) Published
Abstract [en]
Aim
To describe patients' with chronic obstructive pulmonary disease (COPD) experiences of group-based self-management education with a digital website.
Design
A qualitative approach with a phenomenologicalmethod. Patients participating in an earlier study, with self-experience of COPD as a special competence, were involved as research partners at the design of this study.
Methods
Eleven individual and two group interviews with five participants in each group were conducted.
Results
Group-based self-management education with a digital website supports learning. Sharing experiences with others in similar situations creates security and reduces the feeling of being alone. Based on questions and discussion in the group, and through self-reflection, general information is transformed into useful knowledge and understanding of one's own situation. COPD information on the website provides an opportunity to gain knowledge continuously based on needs that contributes to learning. This research has demonstrated that adapting learning activities to individual learning styles increases sustainability of learning. Sharing experiences reduces feelings of loneliness. It is therefore important to create spaces for sharing experiences and in-depth reflection that support learning over time.
Place, publisher, year, edition, pages John Wiley & Sons, 2024. Vol. 11, no 4, article id e2153
Keywords [en]
COPD team, eHealth, patient involvement, phenomenology, self-management, sustainable learning
National Category
Nursing
Research subject Wellbeing in long-term health problems (WeLHP)
Identifiers URN: urn:nbn:se:his:diva-23755 DOI: 10.1002/nop2.2153 ISI: 001205658800001 PubMedID: 38641867 Scopus ID: 2-s2.0-85191031229 OAI: oai:DiVA.org:his-23755 DiVA, id: diva2:1853626
Note CC BY 4.0 DEED
Correspondence: Mia Berglund, School of Health Sciences, University of Skövde, 541 28 Skövde, Sweden. Email: mia.berglund@his.se
Funding information: Skaraborg Institute, Sweden, Grant/Award Number: 19/1034
2024-04-232024-04-232024-07-05 Bibliographically approved