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A feeling of not being alone – Patients' with COPD experiences of a group‐based self‐management education with a digital website: A qualitative study
University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR). (Wellbeing in Long-term Health Problems (WeLHP))ORCID iD: 0000-0002-2671-1041
FoU‐centrum Skaraborg ‐ R&D Centre Skaraborg, Region Västra Götaland, Skövde, Sweden ; Department of Health Sciences, University West, Trollhättan, Sweden.ORCID iD: 0000-0002-2188-4306
University of Skövde, School of Health Sciences. University of Skövde, Digital Health Research (DHEAR). Research and Development Centre, Skaraborg Hospital, Skövde, Sweden. (Wellbeing in Long-term Health Problems (WeLHP))ORCID iD: 0000-0002-7861-7735
2024 (English)In: Nursing Open, E-ISSN 2054-1058, Vol. 11, no 4, article id e2153Article in journal (Refereed) Published
Abstract [en]

Aim

To describe patients' with chronic obstructive pulmonary disease (COPD) experiences of group-based self-management education with a digital website.

Design

A qualitative approach with a phenomenologicalmethod. Patients participating in an earlier study, with self-experience of COPD as a special competence, were involved as research partners at the design of this study.

Methods

Eleven individual and two group interviews with five participants in each group were conducted.

Results

Group-based self-management education with a digital website supports learning. Sharing experiences with others in similar situations creates security and reduces the feeling of being alone. Based on questions and discussion in the group, and through self-reflection, general information is transformed into useful knowledge and understanding of one's own situation. COPD information on the website provides an opportunity to gain knowledge continuously based on needs that contributes to learning. This research has demonstrated that adapting learning activities to individual learning styles increases sustainability of learning. Sharing experiences reduces feelings of loneliness. It is therefore important to create spaces for sharing experiences and in-depth reflection that support learning over time.

Place, publisher, year, edition, pages
John Wiley & Sons, 2024. Vol. 11, no 4, article id e2153
Keywords [en]
COPD team, eHealth, patient involvement, phenomenology, self-management, sustainable learning
National Category
Nursing
Research subject
Wellbeing in long-term health problems (WeLHP)
Identifiers
URN: urn:nbn:se:his:diva-23755DOI: 10.1002/nop2.2153ISI: 001205658800001PubMedID: 38641867Scopus ID: 2-s2.0-85191031229OAI: oai:DiVA.org:his-23755DiVA, id: diva2:1853626
Note

CC BY 4.0 DEED

Correspondence: Mia Berglund, School of Health Sciences, University of Skövde, 541 28 Skövde, Sweden. Email: mia.berglund@his.se

Funding information: Skaraborg Institute, Sweden, Grant/Award Number: 19/1034

Available from: 2024-04-23 Created: 2024-04-23 Last updated: 2024-07-05Bibliographically approved

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Berglund, MiaKjellsdotter, Anna

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CiteExportLink to record
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Citation style
  • apa
  • apa-cv
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
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  • Other locale
More languages
Output format
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