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Cancer patients’ information seeking behavior related to online electronic healthcare records
University of Skövde, School of Informatics. University of Skövde, Informatics Research Environment. (Informationssystem, Information Systems)ORCID iD: 0000-0001-8957-9853
Uppsala University, Sweden ; Åbo Akademi University, Finland.
University of Skövde, School of Informatics. University of Skövde, Informatics Research Environment. (Informationssystem, Information Systems)ORCID iD: 0000-0002-8607-948X
Uppsala University, Sweden.
2021 (English)In: Health Informatics Journal, ISSN 1460-4582, E-ISSN 1741-2811, Vol. 27, no 3, p. 1-12Article in journal (Refereed) Published
Abstract [en]

Patients’ online access to their EHR together with the rapid proliferation of medical information on the Internet has changed how patients use information to learn about their health. Patients’ tendency to turn to the Internet to find information about their health and care is well-documented. However, little is known about patients’ information seeking behavior when using online EHRs. By using information horizons as an analytical tool this paper aims to investigate the information behavior of cancer patients who have chosen to view their EHRs (readers) and to those who have not made that option (non-readers). Thirty interviews were conducted with patients. Based on information horizons, it seems that non-reading is associated with living in a narrower information world in comparison to readers. The findings do not suggest that the smallness would be a result of active avoidance of information, or that it would be counterproductive for the patients. The findings suggest, however, that EHRs would benefit from comprehensive linking to authoritative health information sources to help users to understand their contents. In parallel, healthcare professionals should be more aware of their personal role as a key source of health information to those who choose not to read their EHRs. 

Place, publisher, year, edition, pages
Sage Publications, 2021. Vol. 27, no 3, p. 1-12
Keywords [en]
Electronic healthcare records, health information, information behavior, information horizons, patients, adult, article, avoidance behavior, cancer patient, human, information seeking, interview, medical information
National Category
Nursing Health Care Service and Management, Health Policy and Services and Health Economy Computer and Information Sciences Information Systems
Research subject
Information Systems
Identifiers
URN: urn:nbn:se:his:diva-20263DOI: 10.1177/14604582211024708ISI: 000691405200001PubMedID: 34296650Scopus ID: 2-s2.0-85111118167OAI: oai:DiVA.org:his-20263DiVA, id: diva2:1583121
Funder
NordForsk, 100477
Note

CC BY 4.0

© The Author(s) 2021.

Corresponding author: Isto Huvila, Department of ALM, Uppsala University, Thunbergsvägen 3H, Uppsala 75105, Sweden. Email: isto.huvila@abm.uu.se

The author(s) disclosed of the following financial support for the research, authorship, and/or publication of this article. This work was partly supported by NordForsk through the funding to Nordic eHealth for Patients: Benchmarking and Developing for the Future (NORDeHEALTH), project number 100477.

Available from: 2021-08-05 Created: 2021-08-05 Last updated: 2021-10-29Bibliographically approved

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Rexhepi, HanifeÅhlfeldt, Rose-Mharie

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