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Cancer patients' information seeking behaviour related to online electronic healthcare records
University of Skövde, School of Informatics. University of Skövde, Informatics Research Environment. (Informationssystem (IS), Information Systems)ORCID iD: 0000-0001-8957-9853
Department of ALM, Uppsala University, Sweden ; Information Studies, Åbo Akademi University, Finland.
University of Skövde, School of Informatics. University of Skövde, Informatics Research Environment. (Informationssystem (IS), Information Systems)ORCID iD: 0000-0002-8607-948X
Department of Information Technology, Uppsala University, Sweden.
2022 (English)In: Proceedings of the 18th International Symposium on Health Information Management Research / [ed] Peter Bath; Päivi Jokela; Laura Sbaffi, Kalmar: Linnaeus University; University of Sheffield , 2022Conference paper, Published paper (Refereed)
Abstract [en]

Patients’ online access to their EHR together with the rapid proliferation of medical information on theInternet has changed the way patients use the information to learn about their health. It is welldocumented that patients often turn to the Internet to find information about their health and care.However, little is known about patients´ information seeking behaviour when using online EHRs. Byusing information horizons as an analytical tool this paper aims to investigate the informationbehaviour of cancer patients who have chosen to view their EHRs (readers) and to those who havenot made that option (non-readers). Thirty interviews were conducted with patients. Based oninformation horizons, it seems that non-reading is associated with living in a narrower informationworld in comparison to readers. The findings do not suggest that the smallness would be a result of anactive avoidance of information, or that it would be counterproductive for the patients.

Place, publisher, year, edition, pages
Kalmar: Linnaeus University; University of Sheffield , 2022.
Keywords [en]
Electronic healthcare records, information behavior, health information, information horizons, patients
National Category
Computer and Information Sciences
Research subject
Information Systems
Identifiers
URN: urn:nbn:se:his:diva-19485DOI: 10.15626/ishimr.2020.05ISBN: 978-91-89081-09-3 (electronic)OAI: oai:DiVA.org:his-19485DiVA, id: diva2:1530180
Conference
The 18th International Symposium on Health Information Management Research, iSHIMR, Using digital information for better patient health, care and well-being, Kalmar, Sweden (Online) 17-18 October 2020
Note

CC BY-NC-ND 4.0

Available from: 2021-02-22 Created: 2021-02-22 Last updated: 2022-05-05Bibliographically approved

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Rexhepi, HanifeÅhlfeldt, Rose-Mharie

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CiteExportLink to record
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