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Like being covered in a wet and dark blanket: Parents' lived experiences of losing a child to cancer
Högskolan i Skövde, Institutionen för hälsa och lärande. Högskolan i Skövde, Forskningsspecialiseringen Hälsa och Lärande. CHILD Research Group, Department of Nursing Science, School of Health Sciences, Jönköping University, Jönköping, Sweden. (Kvinna, barn och familj (WomFam), Woman, Child and Family)ORCID-id: 0000-0001-6419-2417
Högskolan i Skövde, Institutionen för hälsa och lärande. Högskolan i Skövde, Forskningsspecialiseringen Hälsa och Lärande. Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden. (Äldre och långvariga hälsoproblem, Older Adults and Long-Term Health Problems)ORCID-id: 0000-0002-9194-3244
Department of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
Högskolan i Skövde, Institutionen för hälsa och lärande. Högskolan i Skövde, Forskningsspecialiseringen Hälsa och Lärande. (Kvinna, barn och familj (WomFam), Woman, Child and Family)
2016 (engelsk)Inngår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 25, s. 40-45Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Purpose: The aim of this study was to illuminate parents' lived experiences of losing a child to cancer. Method: Interviews and a narrative about parents' experiences of losing a child to cancer were gathered from six parents of children whom had participated in a longitudinal study across the child's illness trajectory. The analysis of the data was inspired by van Manen's hermeneutic phenomenological approach. Results: One essential theme emerged: Like being covered in a wet and dark blanket, as well as six related themes: Feeling conflicting emotions, Preparing for the moment of death, Continuing parenting after death, Recollecting and sharing memories, Working through the sorrow and New perspectives in life. Conclusion: There is a need for good palliative care. If not, there is a risk that the parent will perseverate and blame themselves for not being a good parent during the suffering child's last time in life. Meetings with the parents six months and two years after the child's death might facilitate healing through the grief process. 

sted, utgiver, år, opplag, sider
2016. Vol. 25, s. 40-45
Emneord [en]
Parents, Paediatric cancer, Palliative care, Death, Lived experience, Nursing
HSV kategori
Forskningsprogram
Kvinna, barn och familj (WomFam)
Identifikatorer
URN: urn:nbn:se:his:diva-13269DOI: 10.1016/j.ejon.2016.08.007ISI: 000389172500006PubMedID: 27865251Scopus ID: 2-s2.0-84988644276OAI: oai:DiVA.org:his-13269DiVA, id: diva2:1060650
Tilgjengelig fra: 2016-12-29 Laget: 2016-12-29 Sist oppdatert: 2019-08-28bibliografisk kontrollert

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Björk, MariaSundler, Annelie J.Hammarlund, Kina

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