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Gillsjö, Catharina, Senior LecturerORCID iD iconorcid.org/0000-0003-3970-1288
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Publications (10 of 22) Show all publications
Åberg, C., Gillsjö, C., Hallgren, J. & Berglund, M. (2020). "It is like living in a diminishing world": older persons' experiences of living with long-term health problems - prior to the STRENGTH intervention. International Journal of Qualitative Studies on Health and Well-being, 15(1), 1-12, Article ID 1747251.
Open this publication in new window or tab >>"It is like living in a diminishing world": older persons' experiences of living with long-term health problems - prior to the STRENGTH intervention
2020 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 15, no 1, p. 1-12, article id 1747251Article in journal (Refereed) Published
Abstract [en]

Introduction: Ageing is often associated with multiple long-term health problems influencing older persons' well-being in daily living. It is not unusual that the point of interest in research is often on the management of the actual health problem instead of being holistic and person-centred.Purpose: To describe the phenomenon of living with long-term health problems that influence daily living, from the older persons' perspective.Methods: Qualitative individual interviews were conducted with 34 older persons living with long-term health problems. The data were analysed using a Reflected Lifeworld Research (RLR) approach, grounded in phenomenology. Results: Life with long-term health problems entails living in a diminishing world. It entails living in uncertainty, not being able to trust one's own ability. The freedom to make decisions of your own is deprived by relatives and health-care providers. Living with long-term health problems entails being dependent on support in daily life and a strive to maintain meaningfulness in daily living.Conclusions: The results address a need for extended individual and holistic guidance and support in living with long-term health problems to increase the older person's sense of well-being and meaning in life.

Place, publisher, year, edition, pages
Taylor & Francis, 2020
Keywords
Ageing, health problem, illness, multimorbidity, patient perspective, phenomenology, qualitative research, reflective lifeworld research, strength, well-being
National Category
Nursing
Research subject
Wellbeing in long-term health problems (WeLHP)
Identifiers
urn:nbn:se:his:diva-18421 (URN)10.1080/17482631.2020.1747251 (DOI)000526446300001 ()32275201 (PubMedID)2-s2.0-85083506007 (Scopus ID)
Available from: 2020-04-30 Created: 2020-04-30 Last updated: 2020-05-04Bibliographically approved
Gillsjö, C., Nässén, K. & Berglund, M. (2020). Suffering in silence: a qualitative study of older adults’ experiences of living with long-term musculoskeletal pain at home. European Journal of Ageing
Open this publication in new window or tab >>Suffering in silence: a qualitative study of older adults’ experiences of living with long-term musculoskeletal pain at home
2020 (English)In: European Journal of Ageing, ISSN 1613-9372, E-ISSN 1613-9380Article in journal (Refereed) Epub ahead of print
Abstract [en]

Long-term musculoskeletal pain is a major, disabling, and often undertreated health problem among the increasing number of older adults worldwide. However, there is limited knowledge of community-dwelling older adults’ experiences of living with this type of pain. The aim of the study was to deepen the understanding of the phenomenon: how older adults experience living with long-term musculoskeletal pain at home. The study design was an inductive qualitative Reflective Lifeworld Research approach grounded in phenomenological epistemology. Data were obtained from 20 community-dwelling older adults, aged 72–97 years. Data were collected through open-ended interviews and analyzed to understand the meanings of the phenomenon. The essence of the phenomenon entailed suffering in silence and encompassed the following constituents: loneliness and restrictions in daily living; ways to endure and distract from pain; not being taken seriously; fear of the future; and valuing joy and meaning in life. Living with long-term musculoskeletal pain restricts access to the world and leads to a suffering in silence. Finding ways to endure and distract from pain and to focus on issues that give joy and meaning in life is predominant in efforts to balance restraints from pain in life. Suffering is reinforced by loneliness, a sense of not being taken seriously by health care providers and fear of an uncertain future. It is necessary to foster increased attentiveness and sensitivity in meeting the needs of each older adult and provide a care that alleviates suffering and preserves and promotes health and well-being. © 2020, The Author(s).

Place, publisher, year, edition, pages
Springer, 2020
Keywords
Endurance of pain, Home, Loneliness, Meaning in life, Nursing, Qualitative interviews
National Category
Nursing
Research subject
Wellbeing in long-term health problems (WeLHP)
Identifiers
urn:nbn:se:his:diva-18431 (URN)10.1007/s10433-020-00566-7 (DOI)2-s2.0-85083768928 (Scopus ID)
Available from: 2020-05-07 Created: 2020-05-07 Last updated: 2020-05-08Bibliographically approved
Berglund, M., Gillsjö, C. & Svanström, R. (2019). Keys to person-centred care to persons living with dementia: Experiences from an educational program in Sweden. Dementia, 18(7-8), 2695-2709
Open this publication in new window or tab >>Keys to person-centred care to persons living with dementia: Experiences from an educational program in Sweden
2019 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 18, no 7-8, p. 2695-2709Article in journal (Refereed) Published
Abstract [en]

Growing old entails an increased risk of disabilities and illnesses such as dementia. The orientation in Sweden on national level is that individuals remain in their own homes if desired and receive person-centred home care. The aim of this study was to describe the experience of an educational program and its influence on daily provision of care to persons with dementia. A lifeworld approach was used. Data were collected through group interviews with care providers in the context of home. The findings are presented in five themes: Increased knowledge about dementia and treatment, Relationship-building in order to provide good care, Open and flexible approach conveys calm, Continuity and flexibility are cornerstones in the care and Perceived improvements. This person-centred educational intervention resulted in a care that was based on each individual’s personality, preferences and priorities in life. Education given with continuity over time is key to improving provision of care to person with dementia.

Place, publisher, year, edition, pages
Sage Publications, 2019
Keywords
dementia, education, experience, home health care, person-centred care
National Category
Medical and Health Sciences Nursing
Research subject
Wellbeing in long-term health problems (WeLHP)
Identifiers
urn:nbn:se:his:diva-14695 (URN)10.1177/1471301218754454 (DOI)000485953300017 ()29368533 (PubMedID)2-s2.0-85071976903 (Scopus ID)
Available from: 2018-01-30 Created: 2018-01-30 Last updated: 2019-11-18Bibliographically approved
Dahlheim-Englund, A.-C., Carlsson, G., Nyström, M., Gillsjö, C., Eriksson, I. & Palmér, L. (2019). Life without professional work: perceptions about one’s self, interpersonal relations and social life after retirement. Healthy Aging Research, 8(1)
Open this publication in new window or tab >>Life without professional work: perceptions about one’s self, interpersonal relations and social life after retirement
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2019 (English)In: Healthy Aging Research, ISSN 2261-7434, Vol. 8, no 1Article in journal (Refereed) Published
Abstract [en]

The aim of this study is to understand how healthy, older adults in Sweden perceive their life situation after retirement. The study is based on a lifeworld approach, and a phenomenographic method was used. Eighteen participants were interviewed, and data were analysed according to the phenomenographic principle of qualitatively different categories. Two categories were developed. The first category, “perceptions that draw attention inward, towards one’s self”, was further described in three subcategories: Sense of decreased status in society, the desire to keep aging at a distance, and contemplation of one’s own existence. The second category, “perceptions that draw attention outward, away from one’s self” was further described in the following four subcategories: caretaking of family members, involvement in social relationships, finding of deep meaning in animals and nature and engagement with society. In the discussion, the findings are further illuminated through comparisons with concepts such as maturity, wisdom and gerotranscendence, and reflections on the findings ‘relevance to a caring context follow. The conclusion suggests this study can provide knowledge that will allow healthcare providers to bridge the gap between generations in order to provide high-quality care. However, for a more profound caring dialogue, for example, about the end of life, a deeper analysis is required.

Place, publisher, year, edition, pages
Wolters Kluwer, 2019
National Category
Medical and Health Sciences Nursing Social Work
Research subject
Wellbeing in long-term health problems (WeLHP)
Identifiers
urn:nbn:se:his:diva-16895 (URN)10.35248/har.2019.8.2 (DOI)000467323300001 ()
Available from: 2019-05-16 Created: 2019-05-16 Last updated: 2020-05-05
Palmér, L., Nyström, M., Carlsson, G., Gillsjö, C., Eriksson, I. & Dalheim-Englund, A.-C. (2019). The meaning of growing old: A lifeworld hermeneutic study on existential matters during the third age of life. Healthy Aging Research, 8(2), 1-7, Article ID 8.
Open this publication in new window or tab >>The meaning of growing old: A lifeworld hermeneutic study on existential matters during the third age of life
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2019 (English)In: Healthy Aging Research, E-ISSN 2261-7434, Vol. 8, no 2, p. 1-7, article id 8Article in journal (Refereed) Published
Abstract [en]

This study investigates existential matters in the third age of life, which encompasses the years after retirement and ends when extensive support needs emerge in the fourth age. As the theoretical starting point in a lifeworld hermeneutic approach, 18 healthy older adults were interviewed about what it means for them to grow old. The interviews were interpreted according to Gadamer's principles of openness and Ricoeur's proposal to provide suggestions on how meaning can be explained. The findings are presented in three interpreted themes: Feeling free, Becoming vulnerable, and Existing in closeness to death. The themes are further interpreted, and a comprehensive understanding is reached with theoretical support from Jean-Paul Sartre's idea of factuality and project. The meaning of growing old is discussed in terms of positive factors, such as healthy aging, transition and gerotranscendence, but also in respect to concerns over future suffering in relation to illness and dependence. It is concluded that the freedom of the third age is greatly appreciated for a healthy life, but also threatened by increased risks of ill health. It is not morbidity in itself that worries most, but the risk of being dependent on care and support from others. This is important to consider when planning and performing care in order to promote a healthy aging.

Place, publisher, year, edition, pages
Wolters Kluwer, 2019
Keywords
Caring science, Dependence on care, Existential matters, Healthy aging, Lifeworld hermeneutics
National Category
Nursing
Research subject
Wellbeing in long-term health problems (WeLHP)
Identifiers
urn:nbn:se:his:diva-17814 (URN)10.35248/har.2019.8.8 (DOI)000489302100001 ()
Available from: 2019-10-25 Created: 2019-10-25 Last updated: 2020-01-29Bibliographically approved
Eriksson, I., Lindblad, M., Möller, U. & Gillsjö, C. (2018). Holistic health care: Patients' experiences of health care provided by an Advanced Practice Nurse. International Journal of Nursing Practice, 24(1), Article ID e12603.
Open this publication in new window or tab >>Holistic health care: Patients' experiences of health care provided by an Advanced Practice Nurse
2018 (English)In: International Journal of Nursing Practice, ISSN 1322-7114, E-ISSN 1440-172X, Vol. 24, no 1, article id e12603Article in journal (Refereed) Published
Abstract [en]

INTRODUCTION: Advanced Practice Nurse (APN) is a fairly new role in the Swedish health care system.

AIM: To describe patients' experiences of health care provided by an APN in primary health care.

METHODS: An inductive, descriptive qualitative approach with qualitative open-ended interviews was chosen to obtain descriptions from 10 participants regarding their experiences of health care provided by an APN. The data were collected during the spring 2012, and a qualitative approach was used for analyze.

RESULTS: The APNs had knowledge and skills to provide safe and secure individual and holistic health care with high quality, and a respectful and flexible approach. The APNs conveyed trust and safety and provided health care that satisfied the patients' needs of accessibility and appropriateness in level of care.

CONCLUSION: The APNs way of providing health care and promoting health seems beneficial in many ways for the patients. The individual and holistic approach that characterizes the health care provided by the APNs is a key aspect in the prevailing change of health care practice. The transfer of care and the increasing number of older adults, often with a variety of complex health problems, call for development of the new role in this context.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2018
Keywords
Advanced Practice Nurse, experience, holistic, patient satisfaction, primary health care, qualitative
National Category
Nursing
Research subject
Wellbeing in long-term health problems (WeLHP)
Identifiers
urn:nbn:se:his:diva-14285 (URN)10.1111/ijn.12603 (DOI)000424142400003 ()29071766 (PubMedID)2-s2.0-85032172592 (Scopus ID)
Available from: 2017-11-01 Created: 2017-11-01 Last updated: 2018-02-22Bibliographically approved
Curtin, A., Martins, D. C., Gillsjö, C. & Schwartz-Barcott, D. (2017). Ageing out of place: The meaning of home among hispanic older persons living in the United States. International Journal of Older People Nursing, 12(3), Article ID e12150.
Open this publication in new window or tab >>Ageing out of place: The meaning of home among hispanic older persons living in the United States
2017 (English)In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 12, no 3, article id e12150Article in journal (Refereed) Published
Abstract [en]

Aim

To explore the meaning of home among older Hispanic immigrants who are “aging out of place.”

Background

Emerging evidence supports the concept of older persons ageing in place. Nurse researchers have demonstrated that older person who age in place have better physical, psychological and cognitive outcomes. Less, however, is known about older persons who are “aging out of place,” meaning out of their country of origin. With the growth of home health care, there is a need to understand the older immigrants' meaning of home when ageing out of their country of origin.

Design and Method

An inductive, qualitative descriptive research design was used. Seventeen Hispanic participants, ranging in age from 65 to 83 years were interviewed using a semi-structured interview protocol.

Findings

Two major finding of the study focused on participants' descriptions of home in their country of origin and in the USA. The majority of participants described their home in their native country as the community, countryside or town (pueblo) and in the U.S.A. as family. The level of social isolation and loneliness among participants was evident.

Conclusions

Older Hispanic immigrants who are “aging out of place” integrate their past experiences of sense of place in their native country with their present experiences of home in the USA. The need to understand the role of the community and the family in the provision of nursing care in the home may be more important than the physical structure or setting in which it is delivered. Further intra- and cross-national studies are needed to provide a framework for understanding the issues of ageing and immigration globally.

Implications for Practice

Gerontological nurses need to recognise the complexity of family relationships for older Hispanic persons who are ageing out of place of origin and their risk of depression, social isolation, and loneliness.

Place, publisher, year, edition, pages
Wiley-Blackwell Publishing Inc., 2017
Keywords
ageing out of place, hispanics, home, immigrants, older persons, sense of place
National Category
Nursing
Research subject
Age and Ageing
Identifiers
urn:nbn:se:his:diva-13492 (URN)10.1111/opn.12150 (DOI)000407843000007 ()28393460 (PubMedID)2-s2.0-85017632767 (Scopus ID)
Projects
Ageing in Place
Available from: 2017-05-25 Created: 2017-05-25 Last updated: 2019-11-20Bibliographically approved
Berglund, M. & Gillsjö, C. (2017). Reflekterande KRAFT-givande samtal (1ed.). In: Karin Dahlberg, Inger Ekman (Ed.), Vägen till patientens värld och personcentrerad vård: Att bli lyssnad på och förstådd (pp. 317-334). Stockholm: Liber
Open this publication in new window or tab >>Reflekterande KRAFT-givande samtal
2017 (Swedish)In: Vägen till patientens värld och personcentrerad vård: Att bli lyssnad på och förstådd / [ed] Karin Dahlberg, Inger Ekman, Stockholm: Liber, 2017, 1, p. 317-334Chapter in book (Refereed)
Place, publisher, year, edition, pages
Stockholm: Liber, 2017 Edition: 1
National Category
Nursing
Research subject
Wellbeing in long-term health problems (WeLHP)
Identifiers
urn:nbn:se:his:diva-14223 (URN)978-91-47-11271-5 (ISBN)
Available from: 2017-10-11 Created: 2017-10-11 Last updated: 2018-02-16Bibliographically approved
Berglund, M., Nässén, K., Hedén, L. & Gillsjö, C. (2016). Older Adults' Experiences of Reflective STRENGTH-Giving Dialogues: An Interview Study. Journal of Gerontology & Geriatric Research, 5(3), Article ID 1000304.
Open this publication in new window or tab >>Older Adults' Experiences of Reflective STRENGTH-Giving Dialogues: An Interview Study
2016 (English)In: Journal of Gerontology & Geriatric Research, ISSN 2167-7182, Vol. 5, no 3, article id 1000304Article in journal (Refereed) Published
Abstract [en]

Background: A major health problem that frequently accompanies old age is long-term pain, but pain must be acknowledged by older adults and health care providers. Interventions are needed to alleviate pain and suffering’ while holistically providing health care that promotes wellbeing. The intervention project, Reflective STRENGTHGiving Dialogues© (STRENGTH) was implemented to increase health and wellbeing among community dwelling older adults living with long-term musculoskeletal pain at home.

Aim: The aim of this study was to describe the older adults’ experiences of the intervention Reflective STRENGTH-Giving Dialogue.

Method: A life world hermeneutic approach was used in collection and analysis of data. Twenty community dwelling older adults participated were interviewed in their homes after the intervention.

Findings: The findings consisted of five themes and showed that the older adults experienced the Reflective STRENGTH-Giving Dialogues as a continuous and trusting relationship that alleviates the pain and breaks the loneliness. They expressed it as a new way to talk about life with pain. The dialogues supported reflection and memory and resulted in a transition in orientation in life.

Conclusion: The Reflective STRENGTH-Giving Dialogues helped the older adults to increase their intellectual, emotional, and physical engagement in daily living. The dialogues facilitated a transition in orientation from past to present, to the future, and from obstacles to opportunities. The dialogues were oriented towards enjoyments, meaning, courage and strength in life as a whole which promoted the older adults’ sense of well-being and vitality. The dialogues also facilitated carrying out small and large life projects. The Reflective STRENGTH-Giving Dialogues created a deepened caring relationship that contributed to an increased sense of security, strength and courage, all of which enhanced the potential for better health and wellbeing.

Place, publisher, year, edition, pages
Omics Publishing Group, 2016
National Category
Nursing
Identifiers
urn:nbn:se:his:diva-13029 (URN)10.4172/2167-7182.1000304 (DOI)
Available from: 2016-10-13 Created: 2016-10-13 Last updated: 2017-11-27Bibliographically approved
Berglund, M., Nässén, K. & Gillsjö, C. (2015). Fluctuation between Powerlessness and Sense of Meaning: A Qualitative Study of Health Care Professionals’ Experiences of Providing Health Care to Older Adults with Long-Term Musculoskeletal Pain. BMC Geriatrics, 15, Article ID 96.
Open this publication in new window or tab >>Fluctuation between Powerlessness and Sense of Meaning: A Qualitative Study of Health Care Professionals’ Experiences of Providing Health Care to Older Adults with Long-Term Musculoskeletal Pain
2015 (English)In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 15, article id 96Article in journal (Refereed) Published
Abstract [en]

Background: There is an increasing number of older adults living with long-term musculoskeletal pain and related disabilities. These problems are frequently unrecognized, underreported, and inadequately treated. Since many older adults desire to remain at home for as long as possible, it is important that individualized and holistically tailored care is provided in these settings. However, there is a complexity in providing care in this context.

The aim of this study was to describe health care professionals’ experiences of providing health care to older adults living with long-term musculoskeletal pain at home.

Methods: The phenomenon, “To provide health care to older adults living with long-term musculoskeletal pain at home”, was studied using reflective lifeworld research (RLR) which is based on phenomenological epistemology. Ten health care providers (nurse, physiotherapists, and occupational therapists) were interviewed and data was analysed.

Results: The health care professional’s emotions fluctuated between powerlessness and meaningfulness. Needs, opportunities, understanding and respect had to be balanced in the striving to do good in the provision of health care in differing situations. Caring for older adults with long-term pain required courage to remain in the encounter despite feelings of insecurity and uncertainty about the direction of the dialogue. The essence of caring for older adults with long-term pain consisted of the following constituents: Sense of powerlessness; striving to provide good health care; and understanding and respect.

Conclusions: The findings indicated that the health care professionals strived to do good and to provide health care that was holistic and sensitive to the older adults’ needs. A significant sense of powerlessness in the situation was experienced by the health care professionals. These findings address and support the need to develop methods that can be used to guide health care providers who support older adults in the context of their homes.

Place, publisher, year, edition, pages
BioMed Central, 2015
Keywords
Health care providers, Experiences, Older adults, Long-term musculoskeletal pain, Home
National Category
Nursing
Research subject
Medical sciences
Identifiers
urn:nbn:se:his:diva-11406 (URN)10.1186/s12877-015-0088-y (DOI)000358904200001 ()26238106 (PubMedID)2-s2.0-84938603721 (Scopus ID)
Available from: 2015-08-24 Created: 2015-08-24 Last updated: 2017-12-04Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-3970-1288

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